Hi everyone, I am a long standing lurker. I have been typing out this message over and over but never send so here goes. I am mum to 4 children, 3 gorgeous girls and 1 special boy.Ashton is nearly 9 months now, he was born nearly 6 wks early due to my uterus giving up the ghost(long story).Anyway he spent 1 wk in intensive care and 2 more in special care.During the 2nd wk we were confronted with the news that something was not right. Being asked by drs if we thought he looked odd etc etc.Well at this time they listed his issues as a high palete, small jaw,sunken chest(not suprised since he had rds),periods of colour changes and bradicardias, wide nose,feeding probs and so on. We were advised to do chromosome testing to rule out certain disorders.He also had an exaggerated fontenelle for which he has had 2 brain scans.We spent the first 4 months scared stiff with various so called proffesionals giving their advice. He was put on pepti junior due to lactose intolerance and has meds for reflux too.He went in to hospital a few times at the start and has open access,but is doin so well at this time. As it stands, we have a dietician, ent consultant, pead consultant,salt,community nurse and nursery nurse.We were faced with an uncertain future which looks much brighter now but have no idea what has caused this. We have been teaching him to take pureed food for 3 months as he still has not lost his tongue reflex, we are startin a signing course in jan and have been referred to portage. Sorry this message is all over the place but i still cry when i go over it as i cant help but blame myself. I know that i shoulnt but i guess i have not dealt with the period after his birth yet. Would love to get advice from you lovely ladies and share this with people that understand.
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PipinJo ·
30/11/2008 02:30
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Tclanger ·
30/11/2008 12:12
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