Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Saved Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

Flip

Here are some suggested organisations that offer expert advice on special needs.

SN children

melatonin..advice please

11 replies

anniebear · 11/03/2005 07:48

I know this was talked about recently but just wanted some advice please..

We used melatonin twice before but Ellie never really got the full amount.

We got given the capsules full of tiny like beady things That don't dissolve!

We struggled in the past giving them to her and tried to put it in a bit of milk, but she still ended up with beads round her mouth instead of in!!!

We have the slow release one. As Ellie is fine going to bed I go up around 10ish to give her some meds. But I really struggled getting it down her last night and it didn't work one bit, if anything she was worse!

Do you know if you can get it in another form which would be easier to give her?

Or is there a better way to get it down her as it is?

How stupid to give this to children and not make it in another way!

Im quite sure it wont work anyway, it hasnt done twice before...but in desperation we will try anything!!!
Thanks

OP posts:

Report

anniebear · 11/03/2005 13:13

anybody......plllllllllease!!!

OP posts:

Report

heartinthecountry · 11/03/2005 13:19

anniebear - no experience of melatonin but one of dd's epilepsy drugs used to come in the same 'little ball' form. I found the best way to get dd to take it was by mixing it in a spoonful of yoghurt or some other such slightly thick thing that the balls would 'stay in' IYSWIM!

I guess that might not work if Ellie doesn't want to eat in the middle of the night though.

Report

heartinthecountry · 11/03/2005 13:19

Oh I am sure I have also read on other threads that you can get liquid melatonin but maybe just from the states...

Report

MrsFROSTgetful · 11/03/2005 15:57

our capsules are full off powder... i will post the manufacturer details later- you can then give the info to the prescriber....amazing how they expect kiddies to take 'adult' versionS

Report

anniebear · 11/03/2005 20:36

Thanks
I am sure our Pharmacist said they had to order it from the states anyway as we have the slow release one

will mention it to them. Liquid would be brill

OP posts:

Report

Davros · 12/03/2005 09:00

To get liquid either get someone going to the USA to bring it home for you or get someone there to send it to you (not stating what it is on the package). Or order it from iherb.com but it is quite low strength.

Report

MrsFROSTgetful · 12/03/2005 10:28

here's the manufacturer that supply powder filled capsules:

www.pennpharm.co.uk/

email: [email protected]

we use SUPERDRUG to get our suppy- have had no problems in over 2 years with this arrangement

Report

anniebear · 12/03/2005 15:26

Thanks

I found a site that sold the liquid Melatonin.

Mentioned it to the Pharmacist today, she said that if we undo the capsule with the melatonin in it wont work, also if we crush the tablet it wont work (think she meant it won't be slow release)

In a way glad as when it didn't work the other night I thought "that's it, our last try" But, if it didn't work because I opened the capsule......you never know!!! .........I can hope.

Anyway!! The Pharmacist said that if we can get a prescription for the liquid she would try to get it for us.

Only thing is, if our Paediatrician thought we could get the liquid form surely she would have given us the prescription in the first place.

Will ring her this week and have a word.

Really cant believe they give giant sized capsules for a 3 year old!!

OP posts:

Report

Loobie · 13/03/2005 15:50

Our cpasules are full of powder too which i open up and put on a spoonful of ANYTHING even sugar at times and he takes it no probs,he has even been know to let me pour an opened capsule straight into his mouth.Ours arent slow release ones but if he swallowed the capsule they would take longer to work.

Report

MrsFROSTgetful · 17/03/2005 22:46

annie- any news?????

Report

anniebear · 18/03/2005 07:25

Sorry, forgot!!

Spoke to Paediatrician, she said that funnily enough she had been in talks with the hospital Pharmacist over this the other day!!

She said that they are looking into it, but it also will come down to cost, as it is not a prescribed drug, it has to go before some board of wosits! (as In I can't remember the name!!)

We Await!!

The Melatonin hasn't really worked for Ellie but I did read the other day that it has had results for around 80% of children but doesn't seem to work as well in children that wake throughout the night.

Why we are always in the minority I'll never know!!!!