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Here are some suggested organisations that offer expert advice on SN.

Got autism dx today!!!!

(19 Posts)
Jambuttie Mon 20-Oct-08 22:21:09

After 2.5yrs of fighting for our son(4.5yrs) and being told we were "bad parents" that nothing was wrong with him oh and that we cause his issues we got his autism dx.

Seen our regional autism specialist in april who said deffo not autistic which we were not happy with and asked for a 2nd opinion

they done ADOS?? test and was confirmed as autism today

Now I search for some answers/advice on how we can help him

Any info would be greatly appreciated as would any that we can feedback to his brothers 1 aged 6yrs and ds's twin

madmouse Mon 20-Oct-08 22:22:52

no info just wanted to say well done fighting and getting the diagnosis.

how are you feeling?

SixSpotBonfire Mon 20-Oct-08 22:26:02

Well done on getting the DX.

My DS3 is 4 1/4 so quite close in age to yours.

We told both his brothers about his DX straight away and they have been brilliant about it and are a big help in looking after him.

You need to start applying for a Statement of Special Educational Needs for him now, and also apply for DLA.

Is he verbal? My DS3 isn't, but is making good progress with PECS.

feelingbitbetter Mon 20-Oct-08 22:28:50

Well done! Keep bumping your thread coz it's late, but there are some real experts on here. Really. I am stunned at how much I have learned just from reading their threads. You will find excellent support and access to info from them.

moondog Mon 20-Oct-08 22:31:00

Jam, well done for fighting.
it must have been exhausting. sad
Have you a statement?

Jambuttie Mon 20-Oct-08 22:31:48

thanks guys

He is verbal although stammers loads esp when stress levels are high

Statement of Special Educational Needs ????? whats that?

Tclanger Mon 20-Oct-08 22:35:25

Message withdrawn at poster's request.

feelingbitbetter Mon 20-Oct-08 22:38:11

You need JimJams or Peachy. from what I've read Jimjams is shit hot on the statement stuff. Peachy too.
if all else fails, start a new thread asking for help re:statement.
I can't help I'm afraid, but you will get all your questions answered here.
Are you new Jambuttie?

melmamof3 Mon 20-Oct-08 22:43:59

Congratulations on finally getting dx. The first few months are probably the hardest, but a relief as well as you'll now know that it isnt all in your head!

You SALT should be able to help you with some local help, mine was fab, and you should be assigned an EP as well who can help. If you can, ask to go on the Early Bird course. It helpes us a lot!

Jambuttie Mon 20-Oct-08 22:44:38

thanks guys

been a mumsnetter for 4 yrs now well almost 5, havent posted in a while thoughblush

Dont know what statementing is oops

mehgalegs Mon 20-Oct-08 22:46:15

Sorry you have had such a fight but good to hear you have a dx.

A Statement of Special Educational Needs will tell the school he will/already attends what his SN are and how they can be met at school.

feelingbitbetter Mon 20-Oct-08 22:54:09

I'm new but regular now and just getting used to who everyone is and who knows what about what. I know nothing about anything yet but have learned so much.
Is it too late to ask to see a special needs health visitor, as you are recently diagnosed?
The link TClanger gave re:DLA is a good one. There's lots of other stuff on there that I found really helpful

tipsycat Mon 20-Oct-08 22:54:19

It's a legal document which outlines the amount & type of educational support which must be provided for your child. The school gets extra money to pay for this support.

Jambuttie Tue 21-Oct-08 06:44:39

I will look into this when we meet with his doc again after her holiday

thanks again folks

Onlyjoking Tue 21-Oct-08 07:37:57

glad you got a clear DX, be kind to yourself cos as much as you may have been expecting it, it is a shock and likely to bring up all sorts of feelings.
Be warned LEA are often not keen on giving statements, in fact some Lea think that if they tell parents that their child won't need a statement, said parents will believe them wink you cannnot get a place in any specialist school without a statement, I look at it as insurance, our three all have a statement.

magso Tue 21-Oct-08 08:55:37

Well done at getting a clear Dx! It is good to have answers so you can support your child. Hope you are OK!

There are courses run by the NAS for parents of newly diagnosed children.

A statement is a legal document listing a childs needs and how they should be met in education. If you think your son will need specialised support in school it is wise to apply.
Sadly it can take a similar level of persistance to get a statement of SEN. I found the ACE download advice useful www.ace-ed.org.uk also Ipsea www.ipsea.org.uk has some suggested letters.

Take care of yourselves. Magso

Jambuttie Tue 21-Oct-08 14:25:54

awww thanx guys will ceratinly look ionto it more now my heads a bit clearer

pushkar Thu 23-Oct-08 21:38:28

see the same old game! how can they say you are bad parents..
please please do as i have done...
you can recover your child if you act as soon as possible
for me there were three answers
1. www.treatingautism.com
and www.autism.com doing a bio medical intervention with nutrition.
there are lots of recovered children using these sites and show you how..the earlier the better.
2.osteopathy to begin with on a weekly basis, we do it through foundation for osteopathy inlondon.
3. any kind of intensive3 play
e.g applied behaviour analysis
sonrise at the autism centrer of america
play therapy through the association of play therapists [bapt]or speech and language therapy [aslt] type in recovered children on my space!

Jambuttie Sat 25-Oct-08 07:52:04

Thanks again for the information- seem to be gathering loads at the moment trying t make sense of it all

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