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Got a diagnosis

(13 Posts)
KarenThirl Mon 07-Mar-05 14:18:33

Been to see the psych this pm. J has Aspergers. Psych said that although sometimes when she observes kids in school she comes away umming and aahhing about whether or not they have it, she was 99% sure when she saw James. Autism testing will still go ahead but it's more of a formality than anything.

MandM Mon 07-Mar-05 14:27:59

Karen - that's good news. I don't have 'experience' of the autistic spectrum, dd's dx is very different, but it seems from a lot of the mums on here that getting the right dx is the first major hurdle, so well done to you! hopefully now James can start to get access to the help and support that he deserves.
How do you feel about the diagnosis? Are you feeling positive or upset? Dd's first diagnosis of CP was a relief because we already knew it really and confirmation was what we were looking for? The 2nd diagnosis, of Williams' Syndrome was like a bolt out of the blue and really hit me for six? I cried for days and didn't tell anyone except immediate family for a long time , there are still some people that don't know the name of her condition . I was worried about the whole 'label' thing, but I know now that it is a big help in getting access to the support dd needs.
Hope you're OK, thinking of you.

MandM Mon 07-Mar-05 14:28:59

Went a bit question mark mad!!! Sorry!

MandM Mon 07-Mar-05 14:29:03

Went a bit question mark mad!!! Sorry!

Merlot Mon 07-Mar-05 17:18:46

Good news Karen? Hopefully J will get all the help he needs now

coppertop Mon 07-Mar-05 18:09:11

Are you okay, Karen? I know it can still be a shock even when you are expecting it IYSWIM.

KarenThirl Mon 07-Mar-05 18:31:59

Thanks all. Yes, I'm doing OK. Had a few tears (obviously) - even though it was one of the eventualities it does hit hard when it's confirmed. Been straight to the library for essential reading material. No doubt I'll be relying on your help, support and advice quite a bit in the next few weeks.


coppertop Mon 07-Mar-05 18:40:54

Let us know if there's anything we can do to help.

beccaboo Mon 07-Mar-05 21:10:35

Just to echo what's been said Karen - hope you're OK. Even if you know it's a possibility, it's pretty tough to hear it. Take care of yourself.

Chocol8 Mon 07-Mar-05 21:14:59

My ds has ADHD and Aspergers - I have found alot of help on MN, I hope we can help you too. Thinking of you. x

MrsFROSTgetful Sat 12-Mar-05 10:54:11

glad that you are finally over the first hurdle...that you have been listened too.

said many time on here before that we go through a 'grieving' process after diagnosis - even if it's an expected outcome.

i think for me it was the 'lifelong' nature of ASD that hit me hardest- and though in some ways improvements do happen- other people don't get it and try to help u by saying that ' its ok- he will grow out of it'....

MOMMALIS Sat 12-Mar-05 13:18:03

Just echoing what everyone else has said .

KarenThirl Sat 12-Mar-05 17:03:16

I'm actually fine emotionally, just struggling with the physical needs of dealing with the diagnosis. For one thing I'm not entirely sure that he fits with AS - as I said earlier there are too many gaps in the profile but the main thing is that he's being recognised for 'something' and that's enough for now. I don't even feel the need to grieve - he's still my little boy with the same personality etc, but life will be harder than we'd planned.

Also, with me having ME it's tough to take in all the information I'm having to read. It's gone in half an hour and I have to re-read, write notes quickly or lose it. My head is full of questions one minute then a complete blank the next. D'oh! What I'd give for a normal head this week!

Still, I'm sure we'll get through it, especially with your support.

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