I am just sitting here with tears running down my face (sorry to sound so dramatical). Went to pick dd up and saw her SALT who wanted a quick word as she had received some info from Bibic. Anyway she said that she had re-tested her language skills and that they were really good. So I asked her if she still had a language disorder and she said "not, really". She then went on to say that dd's problems had changed and were all in the social/communication area. She said she had a communication disorder. Again I feel this is a dressed up word for asd. As I have said before I am fine with asd, absolutely. What I am not fine with is people chopping and changing there minds about what is going on with dd and her difficulties. Although I also appreciate that this is a very grey area too.
I just feel sick today, sick to my stomach.
I have also been very aware myself that dd has been displaying a lot more autistic traits recently, such as:
humming
covering things over with her hand when she looks at them
still eating weird things
fingers in ears (although not as bad lately)
generally talking/singing to herself
She also seems socially to have got worse, to the point that I have to prompt her to say hello to people
I think I as a mum have always known it and have been open to it but have listened (stupidly ) to the professionals. Do they not realise the enormous strain this has on us as parents.
I have been dealing with this for nearly 4 years and I have seriously had enough. I am so scared of the future. I just have this vision of dd walking around as a loner, being poked fun at for being weird.
I just want to run away from it all. I really don't think I can take much more to be honest
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Could really do with a friendly ear :-(
52 replies
Blossomhill · 01/03/2005 16:28
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