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Gah!! DD1's foot is turning in when she is walking now!!

(12 Posts)
SparklyGothKat Tue 23-Sep-08 21:01:06

More shit to deal with.... I want an easy life!!!! sad

madmouse Fri 26-Sep-08 21:57:23

ah, wondered where your message had gone off to!

sorry to hear that dd1's foot is turning in, did it start suddenly? How old is she?

just wanted to respond

by the way have been admiring and enjoying your pics, you make beautiful babies smile

saintvicsta Fri 26-Sep-08 22:04:43

Is she having physio? OT? She needs to be reffered (if not already) to see an orthotist, depending on your area, physios can usually refer. They can treat her with special footwear or a splint or even just an insert for her normal shoes. How old is she?

saintvicsta Fri 26-Sep-08 22:08:42

Just read your profile, sorry if last post seems to tell you how to suck eggs. Beautiful, beautiful pics. Am in love with your DSs early photos. I always look at the photos, am so nosey!

SparklyGothKat Fri 26-Sep-08 22:12:23

thanks

She has mild CP, wears ankle DAFOs. She hasn't seen the physio in a while. She has started toe-walking and her foot is turning in, I suppose we did well to get to 8 years before she started doing this, Ds1 was toewalking at 18 months old, and had an operation in may to correct this

saintvicsta Fri 26-Sep-08 22:24:55

How old are the DAFOs? Are they still fitting well and is the plastic in good nick? Can soften and get stress lines/buckle after being worn for a while (as I'm sure you know). They can be manufactured using thicker polyprop and there are different materials some of which are thin but stiffer IYKWIM. She may also need the trim lines altering. They are usually trimmed behind the toe joints to allow normal foot bend when walking. I would ask for an urgent appointment with the orthotist. You and DD do not need all her hard work undoing now. Does she have nightsplints? Footwear? They can order specialist footwear to go over the DAFOs. Again, apologies if you know this already. I'm fairly new on this board and cannot often offer advise but I work in Orthotics so can be of help sometimes, I hope!

SparklyGothKat Fri 26-Sep-08 22:32:42

they are about a year old. I will phone the hospital on monday and get an appointment (if we don't have to be re-referred againhmm)

saintvicsta Fri 26-Sep-08 22:42:29

Where do you live? You certainly should not need a new referral. The hosps I work with are legally bound to keep files active for 5 yrs following last appointment. I work with NHS trusts in England and Wales and they all have the same policy. Don't let them fob you off. How old is DD now? As a growing child with a (sadly) permanent problem she should be automatically given 6wk, 3 or 6 month review appointments (depending on age/growth) after the last supply of goods. Most hospitals I deal with do this but with reluctance as a) the splints cost a lot and b) the casting appointment can take up a good chunk of their clinic. In fairness, orthotics is grossly underfunded, so sadly it is the people who shout loudest get the most out of it.

SparklyGothKat Fri 26-Sep-08 22:46:33

am in herts, the hospital has changed it so if you don't get seen for 1 year then they discharge you and you have to get a new re-referal. I went mad last time. They don't do reviews, I have to phone up when I notice that DS1's AFOs and DD1's DAFOs are getting tight, then wait 6-8 weeks for an appointment.. so badly run..

saintvicsta Fri 26-Sep-08 22:58:02

Sad but true,Sparkly. Evidence again of underfunding and general lethargy. It is ridiculous to discharge a child after a year and to make you request appointments. I always see it as discrimination of those who look after their appliances. Those who (and believe me, I have heard them all) leave them in the changing room after swimming (an adult not a child), throw them in the bin (a child, but Mum blamed her. Don't know how long it took her to notice they were missing) and give them to the dog to chew shock, get better treatment than the likes of yourselves. I was hopeful you were in one of 'my' English hospitals so I could wangle a bit for you but sadly not. However, if you ever need some self adhesive velcro or anything you can attach yourselves to tide you over till your next appointment, then I'm your girl. Sorry its crap for you.

SparklyGothKat Fri 26-Sep-08 23:00:47

actually, could I be cheeky? DD1's DAFOs velco on the top strap has lost its sticky, do you have any? And Ds1 has lost his pad on the top strap..

saintvicsta Fri 26-Sep-08 23:13:44

OK, more info needed though. Top strap on DSs AFO, 1" thick/deep? what colour sliding pad and velcro? DDs DAFOs, top strap, measures again please. Is it the strap or the bit on the splint? If strap, is it elasticated or normal? Again, colour?

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