Trisomy illnesses

[Kat172]

Hey all Im Kat and my daughter was born with a illness called trisomy 13/patous syndrome, id never heard of this before id actually given birth they told us she would live through the night but she proved everyone wrong she lived 22 months.
Has anyone ever heard of this before

[emskaboo]

Hi Kat,

We have good friends whose second child has Mosaic, a form of the same illness. I'm really sorry for your loss and am sure you know about the support groups there are around including, livingwithtrisomy13.org/, www.trisomy.org/index.php

take care.

[TotalChaos]

Hello Kat and welcome to this board. I'm very sorry to hear that your daughter died. I'ld heard of this syndrome but don't know a great deal about it.

[Kat172]

I no what u mean 22 months is fantastic isnt it, When i had her they thought id keep all her problem from her dad my husband as he hadnt mentioned how ill she was, it took them 3 days to visit her and the rest only ever visit when she was christened only ever seen the rest of inlaws at christmas and birthdays so they never really bothered anyway

[Kat172]

Thank u ladies i no 22 months is a miracle and im glad of those 22 months .

[Arabica]

What a beautiful baby. So sorry to hear of your loss. I am glad you had 22 months with her. Please tell us about her if you want--what was she like?