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Here are some suggested organisations that offer expert advice on SN.


(11 Posts)
jenk1 Fri 05-Sep-08 16:38:33

DD started school yesterday.
She has hemi and is still in nappies, they know this cos we had a meeting with them in july.

The teacher pulled DH aside and said that they require a letter stating that she has a medical condition as they are not authorised to change nappies if they dont receive one.

then DD came home and told us that they told her to go to the toilet today and she refused. angry

So i got straight on to the consultant psych from CAMHS and she is doing them a letter.

really peed off with them.

LollipopViolet Fri 05-Sep-08 16:44:31

That's awful, though I can see their point about the letter- covering their backs. But if they were told about it in July surely they could do it? I'm afraid I don't know what hemi means but didn't want you to go unanswered. Hopefully the letter should sort it out.

Tclanger Fri 05-Sep-08 16:47:41

Message withdrawn at poster's request.

MABS Fri 05-Sep-08 16:54:33

disgusting, my ds (7)has a left hemi too (hemiplegic cerebral palsy)- totally incontinent.

Have you got a paediatric continence nurse near you at a hospital? mine has been wonderful, but school is great too.

PheasantPlucker Fri 05-Sep-08 17:00:02

Really sorry this has been a big problem. My dd1 has a left hemi (as well as other issues, which means she has a statement, and full time 1-1 when in mainstream for part of the week) and is in nappies aged 7. It is tricky enough for the children having this issue in school without staff making it harder.

I know they need to cover their backs (child protection isues with nappy changing as well maybe?) but I hope you get this sorted asap. Good luck!

PheasantPlucker Fri 05-Sep-08 17:01:24

Sorry, isSues! I can spell, really I can!

MABS Fri 05-Sep-08 17:10:46

mine has to self catheterise 4 times a day at school - bloody hard on him

Romy7 Fri 05-Sep-08 18:58:25

some schools require a care plan to be drawn up which states who can change/ where/ when etc... it sounds as though this might be a good idea in this instance as it will force them to get a grip - do you know who the school nurse is that covers your school? sometimes they are useful in providing pointers for staff - sometimes not... does the school have decent changing facilities btw? have they got changing supplies in stock or are you providing on a daily basis?
i'm a bit hmm at your school - they haven't handled this v well at all - i'm keeping my fingers crossed that it all goes smoothly on monday for my dd2, so far so good, but you just don't know what's going to turn up at the last minute, do you?

MABS Sat 06-Sep-08 10:12:44

yes, Romy , you are totally right, ds school did a care plan.

jenk1 Sat 06-Sep-08 17:33:38

hi thanks everyone for your replies, im annoyed at them, yes theyhave a special room just for changing children,they were aware of DD,s needs back in july cos we had a meeting with them.
I phoned her psychiatrist yesterday and she said she will do them a letter,DD doesnt have a paed anymore,but im going to ask our GP to refer her to the incontinence clinic,i do have a letter from her paed saying she has hemi and incontinence difficulties,but later he changed his mind and said she has an extreme toileting phobia,i think she has both.
ill be going in to see the head on monday,to be fair to him, hes only just started last week and so may not be aware but the other staff are.

MABS Sun 07-Sep-08 10:52:46

Jenk - not oin London are you. We arent but we go to see the best incontinence consultant at St Thomas.

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