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Here some suggested organisations that offer expert advice on SN.

Trisomy 9 Experience?

(5 Posts)
snaptoit Fri 05-Sep-08 15:54:43

Looking for anyone with personal experience with trisomy 9 to answer some of my friends queries concerning her recently diagnosed son. TIA

3andnomore Fri 05-Sep-08 20:43:28

sorry no experience, but bumping it up for you

Arabica Fri 05-Sep-08 23:02:07

bumping for you

Woooozle100 Fri 05-Sep-08 23:10:05

no personal experience but this organisation is ace and will be able to provide info / support / list of families affected by same / similar rare chromo disorder. Its called Unique www.rarechromo.org/html/home.asp

snaptoit Sat 06-Sep-08 07:23:03

Thank you lovely people. That site looks great. smile

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