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Here some suggested organisations that offer expert advice on SN.
Looking for anyone with personal experience with trisomy 9 to answer some of my friends queries concerning her recently diagnosed son. TIA
sorry no experience, but bumping it up for you
bumping for you
no personal experience but this organisation is ace and will be able to provide info / support / list of families affected by same / similar rare chromo disorder. Its called Unique www.rarechromo.org/html/home.asp
Thank you lovely people. That site looks great.
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