Have you been to the Neurodisability Service (Wolfson Centre) at GOS?

[mm22bys]

Hi,

DS2 has been referred to be seen by the Neurodisability Team at GOS. This would entail a whole range of assessments.

DS2 has had a lot of tests, assessments, and is receiving therapy. Our community pediatrician thinks it would be a waste of everyone's time for him to be assessed again, and we are inclined to agree.

Has your DC been seen by the Neurodisability Team? What did you get out of it?

Noone can put a label on DS2, other than Development Delay, and he is receiving therapy, so it would be great if he could get named, but I am not sure I want to get him assessed again for the sake of being assessed , when he is being followed up by so many other medical professionals

Any thoughts would be hugely appreciated.

Thanks,

[nuru]

Hi there
Haven't been there ourselves, but a friend takes her son periodically. The benefit she has found has been to get greater detail about various aspects of her son's condition. For example, they assessed his vision in far greater detail than was done/could be done locally - I think they have highly specialist staff and more whizzy up to date equipment.

I guess it would depend on what they were assessing and whether there are any qualitative benefits to be gained from that in terms of info that will help you and the local professionals.

[mm22bys]

Thanks, he was actually initially referred to the Development Vision Clinic, but that was a mistake so the referral was changed to the general development clinic.

I spoke to the SALT there this morning, and she agreed that it would be a duplication of what he's already had, being assessed again, to find out where he is developmentally. She said they don't offer therapy through the centre.

I have cancelled the appointment, with her blessing! so am feeling much happier about things.