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RIVEN Can I pick your brains please?

(16 Posts)
anonandlikeit Mon 25-Aug-08 17:49:52

Just been reading the thread with the baby genius, couldn't think of anything wise to post but was interested in the whole reflux thing.

DS2 is 5 with mild cp/mld/asd etc.
Anyway for the last few weeks he has been moaning about chest & stomach pains etc. The GP checked him over & paed cardio thinks its reflux not cardio related which was the initial concern.
He has been given Gaviscon medicine, I managed to get a couple of doses in him by force feeding but no difference, now he wont take it at all. Even squirting it down him he manages to bring it up through his nose, (a real talent).
Not sure what my next move should be.
He was born at 28 wks & did have reflux coming back up in to his lungs & we had a few close shaves, he was on powdered gaviscon with Nutriprem for the 1st 18 months.
He also has lactulose as otherwise is constantly struggling to go.
Any help or advise Dr Riven would be welcome.

heartmummy Mon 25-Aug-08 18:07:19

hi my dd had reflux doctors gave her domperidone4 times a day, omperzole once a day , also gavisconwith every fed, she has always been tube fed well until 6 weeks ago and all reflux has stopped hope this helps x x

anonandlikeit Mon 25-Aug-08 18:11:33

Thanks Heartmummy, I know i'll have to take him back but just don't want to get fobbed off.

I don't know why it has suddenly started again either? I'm not aware that its diet related, his diet is self limited anyway.

He does seem to wake up with it, so not sure if its painful at night. Difficult to tell as his sleep is rubbish anyway.

anonandlikeit Mon 25-Aug-08 18:12:26

Just re reas my post... I didn't eman i'm going to take him back in a reject kind of way grin

sarah293 Mon 25-Aug-08 18:12:45

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anonandlikeit Mon 25-Aug-08 18:14:51

Thanks riven, whats a fundoplication? & i'll make it a BIG bar of chocolate!

sarah293 Mon 25-Aug-08 18:24:16

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anonandlikeit Mon 25-Aug-08 18:26:12

OOh, I think i'll ask about the PH probe 1st. Does it ahve to stay in 24hrs?
Sorry for all the questions

sarah293 Mon 25-Aug-08 18:28:13

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anonandlikeit Mon 25-Aug-08 18:53:20

Oh my god, I can imagine 24hrs of tears & trying to pull the tube out.

sarah293 Mon 25-Aug-08 18:59:08

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anonandlikeit Mon 25-Aug-08 19:08:23

Oh Feck he'd go balistic!

sarah293 Mon 25-Aug-08 19:12:31

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anonandlikeit Mon 25-Aug-08 19:15:41

Understanding OK, tolerance crap, sensory issues HUGE!

sarah293 Mon 25-Aug-08 19:28:28

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anonandlikeit Mon 25-Aug-08 19:34:22

Yeh i'm sure they must have a few tricks up their sleeve. He might not actually need it but just not sure how they will get to the bottom of this otherwise.
Thanks for all the info.

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