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dd with hydrocephalus shunt and epilepsy (+ others) not drunk/eaten for over 36 hours, screaming with 'headache'...advice??

(42 Posts)
PheasantPlucker Wed 20-Aug-08 10:38:26

Am typing this waiting for the local hosp neuro ward (where we have open access) to get back to me. DD1 has not drunk anything since Mon evening - except 10 mls of Calpol I almost forced her to drink last night. I am starting to panic now. Dh has gone to work, and I have dd2 here too. Am worried that it is shunt malfunction - but could just be a virus??? No temp tho. I wish neuro ward would call back, I am reluctant to call again as I know they are busy caring for sick children. And we are supposed to talk to them first before just rocking up there.

DD1 keeps SCREAMING as she momentarily wakes up, then back to sleep again.

GP Totally crap. Will just either 1) say no appts 2) send to hosp anyway.

Sorry, I am rambling. Any thoughts anyone????

jimjamshaslefttheyurt Wed 20-Aug-08 10:42:42

Ring again and tell them you are coming in in 15 minutes as you are very worried. If they don't want you to come straight down they can ring you back in that 1/4 hour.

I don't trust wards etc to phone back. They're so busy that unless something is in their face it is forgotten. If you're worried she needs to be seen.

TotalChaos Wed 20-Aug-08 10:43:52

agree with jimjams. hope she feels better soon.

Seuss Wed 20-Aug-08 10:45:49

Agree - say you are coming anyway - if they don't want you to that's up to them to tell you what to do instead.

LaDiDaDi Wed 20-Aug-08 10:47:02

Ring them back again. Your dd needs to be seen.

FioFio Wed 20-Aug-08 10:47:13

Message withdrawn

Seuss Wed 20-Aug-08 10:47:37

Think I would go now anyway tbh. That's a long time without fluids.

TotalChaos Wed 20-Aug-08 10:48:08

DS was like this with not drinking when he had a chest infection earlier in the year btw.

PheasantPlucker Wed 20-Aug-08 10:49:40

On phone to them now.....

Seuss Wed 20-Aug-08 10:51:40


PheasantPlucker Wed 20-Aug-08 10:52:36

Nurse promising to get straight to neurosurgical Registrar and get back to me - but says she thinks we should come in. Thanks for all advice x Wil update asap

Seuss Wed 20-Aug-08 10:53:32

thinking of you.

jimjamshaslefttheyurt Wed 20-Aug-08 10:55:13

Hope she's on the mend soon PP

Sidge Wed 20-Aug-08 10:55:21

Could be a shunt blockage or maybe an infection brewing somewhere - my DD went off her food and drink when she was brewing a chest infection.

Hope it gets sorted ASAP and you get her in soon.

PheasantPlucker Wed 20-Aug-08 10:56:23

Sidge - yes the shunt blockage is always a worry when she is like this. x

PheasantPlucker Wed 20-Aug-08 10:57:45

Sorry -I appear to have started kissing everyone!

PheasantPlucker Wed 20-Aug-08 11:00:35

Yep, neurosurgical Reg wants her in. Will see if I can deposit dd2 somewhere, and go. Thanks for all your help xx

sarah293 Wed 20-Aug-08 11:03:41

Message withdrawn

Tclanger Wed 20-Aug-08 11:50:11

Message withdrawn at poster's request.

BriocheDoree Wed 20-Aug-08 12:27:03

Hope she feels better soon Pheasant!

caitlinnjacksmummy Wed 20-Aug-08 21:57:28

Best wishes n hugs n kisses t you n yr dd xxx

caitlinnjacksmummy Wed 20-Aug-08 21:57:38

Best wishes n hugs n kisses t you n yr dd xxx

FioFio Thu 21-Aug-08 08:32:01

Message withdrawn

PheasantPlucker Thu 21-Aug-08 20:37:25

Thanks for messages and advice. Took dd to hospital. They took bloods etc. In the evening they did a CT scan of her brain, then did an emergency (4 hideous hours!) shunt revision, as her VP shunt had bloocked. Have totally replaced it, in brain and stomach cavity. She is doing well today, ate and drank a little at lunchtime, and has a shaved head on the left side. (not the whole side, just half, by the ear). Tonight dh is staying with her, I left at 7.30 and am going to bed early. Then back tomorrow. A friend has taken dd2 for a couple of days and a sleepover.

I feel totally exhausted, and a little bit 'nervous' sick.

Thanks to all x

Seuss Thu 21-Aug-08 21:21:00

Sorry your dd had to go through all that, but at least she's on the mend. Take care - all of you!

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