Aw - good luck for tommorrow. If he is tactless again perhaps you should lose it with him! I agree about writing points/questions down - it might help you feel more in control of the appointment. Just keep thinking about how much your ds has come on and don't let them get you down.
sorry you are bricking it about tomorrow's appointment. Could you bin the CDT completely after tomorrow on basis you are satisfied with other doctors you have seen, or would that cause problems with local services?
We had to fill in a form to show his progress, areas of concern, and other issues (actually his progress across the main areas takes up one typed page ). Also our Bobath therapist wrote a great summary of his progress.
I would dearly love to bin the CDT as they haven't been helpful, but actually obstructive, but don't know if we need to see them semi-regularly and keep them on-side in order to help him get a statement (he's 20 months). Anyone know?
Good luck for tomorrow, sounds like he has made lots of progress & hope it's recognised! BTW in my borough they have a procedure where the child development team can notify the education department about children who are likely to need a statement--we started DD's off earlier than usual, at around 22 months, so they hadn't got around to doing it yet. You could ask if they do this where you live. And of course the more help they think your DS needs the more likely you are to get the kind of statement you'd like--which is one way of dealing with the negativity...
Well we are back. It got off to a bad start when they phoned at 10.30 to let me know the appointment was at 10, when the letter said 11.30! Luckily they were able to jiggle us in. We spent two hours there...
The ped was very impressed with DS's progress, and said he is a different boy to the one she saw in September. She was very supportive with regard to Bobath funding, but told us it is PCT policy not to fund oabath, but encouraged us to put our and DS's case forward to the PCT (her boss will ultimately make the decision).
We talked about education, and is going to get the ball rolling with that.
I got the impression she is fed up with lack of funding. I have said before that I thought she wasn't on our side, but we left with a very different impression.
I know we have a lot of hard-fought battles ahead of us, but it was all very encouraging, and feel like a massive weight has beeen lifted from our shoulders....