Blimey we got DLA for DS3 at the first attempt!

[SixSpotBurnet]

Granted, it took me over a year since getting his DX to actually do the application form for DLA - but I never thought we would get it first time - was sure we would have to appeal.

One less battle to fight, anyway.

[Sidge]

Great news!!!!

We got it first time too, and renewed with no arguments either, I was so relieved as I hated doing the forms.

[SixSpotBurnet]

He's got worse since I did the forms so he was obviously gearing up for an appeal.

[Blu]

Good!

[TheCheeseAlarm]

Fab news SSB! (I am Doddle by the way). We have a DX for DS1 now, he has hypotonia and hypermobility, which explains a lot!

[SixSpotBurnet]

Oh my goodness, TCA! I hadn't realised that that was on the cards.

[PheasantPlucker]

Very pleased for you. We have never had to fight/go to tribunal but I know others who have and it is horrible. Glad this is one less fight to tackle.

[tibni]

Great news

[bubblagirl]

oh excellent im still awaiting outcome so lets hope there feeling generous and i wont have hassles

[SixSpotBurnet]

Good luck bubblagirl!

[bubblagirl]

thank you and im really happy all turned out well for you x

[bubblagirl]

beginning of june well they had to have it by 15th so hopefully wont be too much longer till we hear would love to treat ds through the holidays were so skint but got to be awarded it first before i spend it in my head lol

[SixSpotBurnet]

Ooh, that's a long wait, hope they hurry up!

Have they sent you the "holding" letter ie acknowledging they have received it and are considering it?

[bubblagirl]

yes they sent me letter to say just waiting on reply from pediatrician so just waiting now oh and they sent me out 2 questions they wanted answered although told in great detail throughout and on seperate paper that was 2 weeks ago so hopefully should be going through now

[bubblagirl]

well i just phones and lady said still have 4 weeks its in the desicion folder which will be done alphabetically

had all reports back etc so now we wait

[SixSpotBurnet]

Gah! Hope they pull their fingers out.

[bubblagirl]

will let you know fingers crossed but once again happy for you it will make so much difference

[SixSpotBurnet]

well I'll be keeping everything crossed for you, bubblagirl

[SammyK]

That's great news

[bubblagirl]

thanks tc

sorry to hack your thread for well wishing for me but maybe it'll bring me luck and no hassle as you seemed so lucky will let you know when i know x

[bubblagirl]

it ould appear all what i wrote was basically as stated on nas website my friend who is social worker helped a bit with the repetitiveness of it

hoping i wont have to appeal will stay positive

hope things are all good your end bubblaboys speech coming along a bit more putting few more words together his favourite is not that or no i dont want that lol then he'll realise it was something good yes i want that lol

[bubblagirl]

bubblaboy is having none they wont do it yet for some reason so made complaint as been observing him for a yr now 3 mths since diagnosed and still no speech therapy driving me mad just pleased he is making progress

still its the sounds all letters are replaced with g and k still so gog the guilder etc

this is where he needs the help to produce different sounds but she is quite useless really hoping money from dla could maybe pay for private help as cant afford it otherwise