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dyslexia where do i go

(35 Posts)
Catwalk Fri 11-Feb-05 12:58:30

I have suspected that ds1 is dyslexic from about the age of six.I told the school and they said he was lazy.Year 3 I expressed my concerns again when they started complaining about his work and behavior and they said they would get someone to look at him.The special needs/teacher told me they think he could be borderline and they were going to start him on the buzz/fuzz program while they wait for testing.I reminded her two months later and she said she hadn't forgotton they were still waiting.On parents night last October they told me they had screened him and didn't think he needed a test he just had a poor memory.This parent evening last week they announce to me that he has a reading age of 7 and an understanding of storys of a 6 year old.I asked them had they actually tested him at all for dyslexia and they said that it is something they will look into.He is 9 in June just how long has this got to go on for.What shall I do next.I feel if I go and talk to the S.E.N.C.O again she will fob me off for another year and

IvortheEngine Fri 11-Feb-05 13:20:56

Catwalk - I'm bumping this for you. I know how you feel as I've recently been through something similar. You might find it helpful to read the thread I started. Search current messages for IvortheEngine. I hope someone with more knowledge will come along in a moment for you. Sorry I can't be of more help. Good luck! I'll keep watching your thread to see how you get on.

Catwalk Fri 11-Feb-05 13:23:18

thanks I feel so frustrated at the moment

Copper Fri 11-Feb-05 13:32:50

Catwalk
We had all this with my ds1. Get in touch with the Dyslexia Institute at http://www.dyslexia-inst.org.uk/

My ds1 still can't spell (age 12) and I don't think he ever will. We are trying to get him to learn to touch type to aid using computers to write. His reading is not as good as it should be but he does read for pleasure.

MAke sure your ds listens to lots of really good story tapes (try the library) or carry on reading him really fun and exciting books - he needs to get the idea that literacy is not just about reading/writing. There are lots of ways to learn. My ds loved nature programmes and picked up huge amounts of information from the TV

Catwalk Fri 11-Feb-05 13:39:59

thanks coopertop I will look them up.

Copper Fri 11-Feb-05 13:41:38

I'm Copper, not Coppertop! I'm an oldie on the site and don't get to post here as often as I used to.

Very happy to talk about dyslexia, but I don't think there are any easy answers.

Catwalk Fri 11-Feb-05 17:19:57

oh really sorry for getting your name wrong copper, perhaps I need to be tested

Catwalk Fri 11-Feb-05 17:21:48

Anyway copper I have made an appointment with them for March so thank you.I hope I can help him as much as I can so I will be greatful for any more advise please

Catwalk Fri 11-Feb-05 20:52:57

hi anyone else got any advice for me please would be grateful

IvortheEngine Fri 11-Feb-05 22:44:34

Bumping this for you.

JaysMum Fri 11-Feb-05 23:03:22

Have the school got copies of the computer programme Word Shark? They helped my son quite a bit with his Dyslexia.

IvortheEngine Sat 12-Feb-05 10:58:54

Bumping this for you.

SofiaAmes Sat 12-Feb-05 23:08:53

We had my stepson tested for dyslexia privately by the Hornsby Institute in London when the school started complaining about his not learning his alphabet at the age of 6. They clearly were not going to do anything about it themselves anytime in the near future. It cost about £300, but was well worth it because it got the statementing process started.

Catwalk Sun 10-Apr-05 00:09:44

hi I feel really awful and hope that you don't feel that all your help went unheard but,our computer broke and I came back online today.
Thanks for all your help.I took him to be tested and he has moderate to servere dyslexia.I told his teacher the next day and she treated me badly saying things like "well one these people get their hooks into you".I was told that my son is very inteligent and she put in her report that he should be treated as such.His teacher disagree's and seems to be treating us like this is something i have made up to cover up for the fact my son is thick (I would hold my hands up if I truley belived this was the case)I am so upset I could scream.Why am I having this battle?1 in 25 children is supposed to be dyslexic so why is she behaving like this.I am waiting for an appoiontment with her,the senco and an expert now.What should I be expecting now? It even turns out that the extra help they told me he is getting is not happening every week because the senco only works part time and has a busy scedule

Catwalk Sun 10-Apr-05 09:47:23

can anyone help me today?

Catwalk Sun 10-Apr-05 20:23:49

cheers anyone

LIZS Sun 10-Apr-05 20:26:52

Weekends here can be a bit hit or miss as regards finding the right people to respond. Try bumping it up tomorrow morning.

Catwalk Mon 11-Apr-05 09:21:25

bump

Catwalk Mon 11-Apr-05 21:23:12

thanks for all that responded to my earlier post last month.feel a bit down now as no one has helped me with something that to me is serious and so close to my heart.i have often tried my best to help others and have been helped a great deal by kind mumsnetters in the past so thank you to you all.

jmb1964 Tue 12-Apr-05 00:11:05

sorry you've not had much joy here catwalk! I'm afraid I don't know a whole lot about dyslexia, and live in Scotland where we seem to get by without SENCOs and the like.
Perhaps you could try posting on Education?
Hope the meeting turns out beter than you expect. Have you given a copy of the report to the teacher, SENCO and head? Might be worth doing this beforehand so they have a chance to digest it first?
Good luck!

rummum Tue 12-Apr-05 13:07:31

Sorry that your going through this with the school, I have been watching this thread with interest we think my daughter is dyspraxic/dyslexic... The only thing I can say is push.. push and push some more. I was alway going in to my daughters classroom and in the end the teacher must have thought "Oh no, not her again" but I didn't care... (I was alway polite, never bulshy)... In the end I had a word with the special needs govener, I then made an appointment with the head, Daughter now has an IEP, and is having 1 to 1 with a lsa once a week, (although this hasn't happened yet)..
Hope this helps, and some gets back and gives you some more advice
Rummum

catgirl Tue 12-Apr-05 13:34:22

you can be intelligent and dyslexia you know! My DH is dyslexic and only got formally diagnosed at age 35, to allow him some extra time in exams. He was told in school that he was lazy (this was the 70s) and that there was no such thing as dyslexia! Sorry I can't help with what to expect next, but I do hope the school work with you not against you.

catgirl Tue 12-Apr-05 13:35:57

one thing that has just popped into my head: you can get some glasses for dyslexic's - I think the lenses are tinted pink or something - not sure how it works - but that might be worth looking into? Sure Dyslexia Institute might be able to help?

rummum Tue 12-Apr-05 16:17:11

About the coloured lenses... Daughter had her eyes tested recently because she had trouble copying from the board... Her eye sight is fine, but she has trouble with tracking, and the glare from the board, the optition woman put all these coloured lenses in front of her eyes whilst she was reading, and she read more fluently with light blue lenses... so... we pick them up next week... we were also given some eye excersises to do at home....
HTH

LIZS Tue 12-Apr-05 16:25:18

rummum, is that what is defined as a Visual Tracking problem ? ds has this but we have heard that there are very few specialists in this field - did you have to see anyone in particular. Don't think ds is dyslexic (he reads well but writes awkwardly although without transpositions or reversals) but he has some motor skill issues.

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