Thank you. He has a "safe place", his bed room. We moved to a house with downstairs facilities for him. At least now his siblings get some sleep at night. But he trashed it constantly. He trashes everything in sight.
I couldn't possibly surrender him to residential care i know I couldn't. Equally I don't know how we can carry on like this. Can't live with him/can;t live without him. My DH is ill himself. Sometimes he can hardly walk/stand. He is in so much pain. I rely on the other kids too much for help.
DD goes to occasional young carer activities and I used to think "I can't think of her as a young cater; I will never let her do that much" but now she does so much that I am totally ashamed. She doesn't know what a childhood ought to be like. Her life is governed by her brother's needs, moods and demands and me screaming at her to help, to fetch something, to get him off me when he is pulling my hair from the root, to fetch a nappy/baby wipes, to help me clean up crap. What life is that? She doesn't remember life without him. She is only 18 months older.
We have only had two days of the summer holidays and already we've hit rock bottom. We dreaded the summer hols so much and now they're here. We NEED school. It's the only way to get through the week.
I am so bloody full of slef pity. I sat in his bedroom earlier just letting him bite me and smelling other people's barbecue smells coming through the window. I am so jealous of their lives which is stupid becuase every family has its problems.
But we can't plan anything. No more holidays ever. We have up on that idea last time we got a funded one from a disability group. Ds made it hell and we came home early.
It feels as if there is no future. This is mine a DH's life until we die. Until then he just gets bigger, stronger, heavier, more violent, less cute.