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dd2 diagnosed with dyspraxia today...

2 replies

geekgirl · 16/07/2008 17:01

and I am strangely pleased

For some time I have been very conscious of the fact that she has a lot more problems with speech than other little ones with DS I know - then I read a post on here where someone mentioned dyspraxia (probably jj actually) so I googled it and looked into it a bit more.

It just all fell into place really.

Today I had her assessed privately by a SALT, and apparently she's got pretty bad dyspraxia in addition to low tone in her face. We're going to get a full programme to do at home and the SALT was pretty confident that we would see a reasonable improvement. She said that she felt dd2 would always have some problems with speech, but that it should get a lot better than it is at the moment.

Apparently dyspraxia is rarely diagnosed in children with DS because everything just gets lumped together under the DS diagnosis, leading to low expectations from everyone... not much of a surprise really

Things are supposedly getting better slowly - let's hope so.

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VictorianSqualor · 16/07/2008 17:17

I know what you mean by being 'strangely pleased'.

I too saw someone mentioning dyspraxia and read into it, it was like someone had spent the day with my DD and jotted notes down about her.

We have her first Paed appointment a week monday and though in some ways I'm in bits about it(especially when I realise a lot of the things I came down hard on her for are probably due to it) but at the same time it's nice to be able to put your finger on it and think about moving on.

Once something has a label it can be understood and worked round so it is the start to hopefully a better life for both your DD and mine.

Good luck with it all.

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TotalChaos · 16/07/2008 18:16

glad you have got the right DX for her speech now, it's such a shame that the professionals dealing with her so far didn't spot it.

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