Here are some suggested organisations that offer expert advice on SN.
oppositional defiant disorder.(27 Posts)
does anyone have experience of this
ds has ADHD and may have this too. At wits end
i'm sorry i dont but i hope someone comes along who can help sorry your feeling at wits end ds has asd and it is very unsettling when your not sure what is in store x
All I know about ODD is that is can be really hard to get a dx as not many places will assess for it. A friend of mine locally was refused assessment for her ds on grounds of cost - I think she was quoted something like £2000.
im wondering if DD has this or PDA, dont really know much about it though, sorry.
my son has a DX of ODD, he is also being assessed for ASD.
PDA : ccgi.pdacontact.org.uk/forum/index.php?sid=58680256ffc09661860a932894614142
ODD : www.cafamily.org.uk/Direct/c52.html
Thank you all so much for your replies!
He is with the CAHMS but I find them useless tbh.
All they go on about is his medication and don't offer much else. I have yet to mention my suspicians about ODD but I have an appointment next week.
Perhaps the defiant thing is part of the ADHD.
The medication is helping his concentration at school but its done nothing to his defiance or his over reactions to everything.
The thing is I've got a 5 year old dd who can be defiant and stroppy but ds takes it to another level.
He even gets a bit stroppy with his teachers at times. I've heard him.
Yet sometimes e's so lovely.
I just don't know what to think
Thanks for the link bonkerz the cafamily link had a paragraph that fitted ds to a t
DS2-11 (really stepson but I've raised him) has this in conjunction with Reactive Attachment Disorder. Living with him is a nightmare. By the end of each year, his teachers are very very tired. We turned to medication last year, which helps somewhat. CAMHS has been useless. I just know he's headed for a future of mental health problems but deep in there is the most wonderful, bright, talented child. Can you tell I'm at my wit's end?
Attachment disorders are not terribly uncommon in fostered and adopted children. They are caused by trauma in the early weeks, months and years and result in a range of emotional and behavioural problems as well as possible executive function issues. In his infancy, DS2 experienced trauma and probable neglect. We don't know what happened exactly as we were not there. His birth mother most probably used crack cocaine ante-natally, and then was also using and drinking heavily when he was an infant. When he came to us late in his first year, he was scrawny, clearly not looked after and his birth mother had been extremely drunk and volatile. His behaviour has always been far from normal in so many ways. I have three other children, so I don't just assign a name to a little bit of defiance. Unless you live with this, you cannot imagine, any more than I can really imagine how hard it is to live with a physically disabled child.
Well, we've been through the mill with CAMHS trying counseling when it's only very specific therapies which have shown any success with RAD. We are currently looking (begging) to get funding for an intensive three-year program of specialised, holistic attachment therapy and counseling, but as you may be aware, children's mental health services are seriously underfunded and difficult to come by. My DS is not on Ritalin, as he doesn't have ADHD -- he's on Risperidone, as he was getting increasingly violent towards all the members of my family, myself and his father included. Yes, probably his ODD is part and parcel of his RAD, but the psychiatrists and clinical psychologists who have seen him seem to think it is both. Of course, this is after years of blaming us, the parents, for his 'naughty' behaviour, compulsive lying and stealing, gorging and other food issues, constant defiance and controlling and manipulative behaviour, destruction of everything he touches, triangulation of adults, and of course, the soiling which never stops and which is constantly scattered around the house and all his clothes and bedding at home and otherwisecharming all those who don't know him well such as parents and teachers to make us look like we're crazy.
Perhaps it's not so much a case of over-labelling in every instance, just new and current research showing that problems which used to be thought of as 'naughty' or 'undisciplined' children are now shown to have a neurological basis. I'm sorry your DD has been mislabeled, but I was glad to finally understand that there was something driving the very strange ways of my DS.
ByTheSea, i sympathise totally with you.
my DS when he was a toddler and so hyperactive (later dx,d as having AS) and anxious-all his behaviours were blamed on me and i was prescribed prozac and told to stop being anxious that it was making DS the way he was.
DD -her nursery have blamed all of her problems on me and DH even though she has a dx of PDD-NOS, i truly believe that the dx,s help children/adults in situations like mine and yours.
I can totally sympathise with you too, jenk1 and agree.
im actualy pushing for further dx for my DS as he has DX of ODD, Severe anxiety social and behavioural issues BUT i believe all these DXs are part of ASD. I have been told ODD cannot exist alone and only exists co-morbidly.
A friend of mine at my support groups has a son Dxd with ASD and ODD, he has the same pead as my DD at out local CDC she is a leading specialist in ASD and told my friend that ODD only exist as a comorbid with ASD.
Twocutedarlings, thats exactly what i have been told by the ed psych, i suspect that is why autism outreach have decided to help us even though we do not have formal DX of ASD yet and also think this is why CAMHS have not argued about further testing for DS.
Personally I think its easier to label and medicate than do the intensive one to one counseling that would work with many of these kids. But it doesn't happen.
Riven I completely agree with them, as bythe sea says childrens mental health is seriously underfunded and it is cheaper and easier just to give them a load of pills and send them on thier way.
I've had issues with CAMHs because ok yes he has had diagnoses Of ADHD for 2 years, all they do is push his medication higher all the time which I really don't think is right.
He was so tired on 35mg of strattera and they are so blinkered 'Well he must take that dose, as that is what is recommended for an 8 year old ADHD child. But all children are different and different children have different ADHD symptoms I would have thought?
so I've cut his dose down to 25mg which has helped his concentration and he still has his liveiness and is able to funtion very well on it. Have yet to tell CAMH!
I asked if there was anything else he could benefit from apart from a group workshop now and again like councelling, even us all learning and putting together strategies for the whole family to deal with hs condition and they said no they just like to medicate first and foremost. Which to me is crazy.
DS has had grief councelling from the NSPCC (crap) as he has lost a lot of close people in our family and he lost his 6 year old friend when he was in year1 to drowning. I just feel that had he had proper help and behavioural therapies at the tthe time of dx then there wouldn't be a need for medication and maybe I wouldn't be asking on here for help with odd.
Sorry if that sounded rambly.
just a bit upset, ds kicked off against his dss before, he gets easily upset and angry that 'they have to come here' and tells them
causes a lot of friction between dp, ds and myself. ds attitude stinks.
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