Hi, my ds is 35 months old, and has asd. He has a portage lady that comes around once a week for 1 -2 hours a week to see him and do various activities with him. I know I am lucky to have portage, I understand there is a waiting list, and not all areas have such good access to portage.
However, lately I have become very dissatisfied with her, and dwhen I try to talk to her about my concerns, she just dismisses me. This adds to my general frustration with her, and with my local LEA.
She knows my ds has asd, but she doesn't work with him as she should do with a child with asd. For example, when he gets tired of the interaction she expects (after around 10 minutes), and she is very intense, she keeps pushing him, and he starts stimming and lying around on the floor. HE obviously doesn't understand what she says, yet she claims he does, she said he was 'lazy' last time, .
I complained about her, and now she does seem to have changed tact, and has agreed to use pecs in combination with the SALT, but she is doing this grudgingly, and keeps on reminding me about this,e.g 'since YOU want to use pecs, I suppose we(her and SALT) could start him off , but only because YOU want to', etc. She does everything so grudgingly, and it just adds to my list of things to deal with.
The team leader for portage in my area, is not great when I complain, and keeps on dropping hints of how her 'loyalty' lies with her 'team'. I think the 'team' at the cdc have a vendetta against me since I complained about a health visitor not long ago.
What worries me the most is that her report will be presented for the statement, and she claims he can understand everything that is said to him.
I have lately come to the realisation that we will have to go for a private assessment of his needs, I don't want to have to go down that road, but I think if I don't my ds will never get what he needs.
Portage lady has no idea about this, I just hope she doesn't read mumsnet, I want to keep it a secret from LEA, till just the right moment, iykwim.
Wow, if you read that ramble, then thanks for that!
I don't really know what my point is, or even if asking for advice, but it is so FRUSTRATING!
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Portage problems!
13 replies
deeeja · 03/02/2008 21:42
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