Sorry this might be long. DS9 has been showing signs of ASD since he was small and it was picked up by his teacher in reception who herself has an autistic child.
He had his first paediatrician app to get the ball rolling 3 years ago, in September someone from Target Autism finally came to the school to assess him and on Saturday he had his ADOS. The results did not score high enough and I was basically told he doesn’t have autism or ADHD, that he’s too smart (wtf) and that he could make some eye contact. I left speechless as I was convinced he would finally get his diagnosis and have some doors open up for him in terms of support.
This is my son:
-Sensory issues - doesn’t like sock seams, I have to cut labels off all his clothes
- Doesn’t like loud noises or people close to him and wears ear defenders as school and home
- talks excessively
- struggles to keep eye contact and looks all around the room whilst talking to you
- he goes straight from being ok to angry In 0-10 and will throw things
- doesn’t sleep and can’t switch off until gone 11pm
- makes loud repetitive noises
- bites and scratches himself
The school are fantastic and he has his own desk so he doesn’t have to sit close to anyone, has a safe space outside he can run away to when things get too much for him and has “interventions” throughout the school day which gets him out of class such as cooking, gardening.
Has anyone been in this situation where their child has been told they aren’t autistic when every other professional that has seen them are convinced they are?
The paediatrician said they will be referring us to CAMHS but we are already in contact with them through the school and they havnt been much help at all.