Hi.
I am a dad who is struggling to cope with my daughter. She is currently going through the diagnosis process for ASD/Aspergers/ADHD and I am really struggling to cope.
I don't know what I am hoping to achieve with this post. Maybe some guidance, maybe some solidarity, maybe some sympathy.
Its quite long and brutally honest so please be gentle with me if you read anything controversial.
My youngest daughter is 7 and she is a completely different child to the social butterfly, outgoing little girl we had 18 months ago.
She used to be so outgoing and confident.
We moved from the South to the North in September 2016 and things were going great and we had no idea there was anything untoward. Her behaviour at home was “normal” although she was always strong willed and happy in her own company.
The first time we had any idea that anything was wrong was one sole occasion in October 2017 where I got a call from school asking us to come and get her as she had lost her temper and had proceeded to rip a school display up and lose her shit.
That was dealt with, quite harshly by the school in that she was excluded from a school film night and made to wear uniform on a mufti day (she was only 4 at the time).
There were no other problems. She got good reports and seemed to be exceeding in some things.
Everything ticked along until December 2018 where we got a phone call out of the blue from school asking for her to be picked up as she was trashing a classroom and they had to evacuate the other children to keep them safe.
We collected her and didn’t think much more of it apart from her having an out-of-character bad day.
However as Christmas 2018 approached we started to get calls from the school on a near daily basis for poor and disruptive behaviour with violent and anti social outbursts and we were at a loss to explain it.
At that point Autism or ASD did not enter my head at all.
We got through Christmas and hoped that it was just out of character behaviour but by March/April 2019 we were getting calls from the school regularly and were having to leave work to collect her.
At one point she'd threatened another child with scissors.
Her usual behaviour was to be violent and destroy things and they would continually have to evacuate the class to keep the other kids safe from her.
We had a meeting in April 2019 where the school said that she was at risk of exclusion (by this point she was 6). We tried really hard at home. I went back on anti depressants (which I had been off for some time) and almost as soon as I went back on it seemed that for a while life was a bit better, so I naturally blamed myself reasoning that I was obviously depressed and had not realised how my behaviour had impacted on the family (although to be honest I hadn't been feeling depressed, just a bit ratty) however her behaviour soon deteriorated again.
By this point I was trying to get help from CAMHS and social services and the GP to no avail. The GP said school had to refer to CAMHS, the school said the GP needed to refer to CAMHS and the GP refused to see us.
By the start of April 2019 we had an agreed behaviour plan in place with school and she was excluded from attending after school club for a short time due to kicking off and trashing it one evening.
We tried to explain to her that if she couldn’t go to kids club my wife would have to leave her job to look after her but she didn’t understand.
By this point each bedtime was taking about 2 hours and she was having huge meltdowns. We were getting no help and the school just seemed to be dealing with her as a naughty child. We were hitting a brick wall and had no idea or advice as to how to cope with her.
It was getting to the stage where we would sit outside the bedroom with our backs against the door to prevent her coming out and she would just trash her room. It would usually result in everyone in the house in tears and me and her mum having a domestic (non violent of course). We had no other ideas how to deal with her and our poor eldest daughter was having to cope with this.
Things continued down this course for some time. We had further meetings at school and eventually we were made subject to an Early Health Care Plan for her. Eventually we managed to get a family support social worker from the Multi Agency Team who was very helpful.
Socially she was no longer the happy strong willed child she used to be. She was withdrawn and prone to outbursts and talking like a baby and having huge meltdowns which would take hours to control.
By the time she restarted school in September 2019 her behaviour had deteriorated so poorly that the educational psychologist recommended a part-time time-table which we agreed to.
This went on for 6 weeks but the school were not supportive at all and in fact were actually obstructive.
After those six weeks it was agreed that she be made subject of a TMP (Taylor Made Program) so she spent half the day at achool and the other half at a pupil referral unit (at the age of 6!). It still felt that the school were treating her as little more than a naughty child. During this time CAMHS said they could not take her on as she was not at crisis point.
We got through Christmas and she rejoined full time education and was doing really well however within the last three weeks (pre-corona virus) she has deteriorated again and we can’t do anything with her.
She had been getting sent home from school a lot, no one can say anything to her as she just kicks off at the slightest thing and everybody, us, her sister and her teachers spend all the time treading on egg shells as no one knows how she is going to react. For example the other day she wanted to do some maths. She breezed through he questions I set her so I gave her a slightly harder one. She got it wrong and it triggered a huge melt down.
The school have just put a new head in place who is so much more supportive and had only been contacting bus when absolutely necessary rather than at the drop of a hat like the old head but its still so hard.
That’s about it as far as her behaviour is at present. Shee appears to have an emotional age of about 4 as opposed to 7.
I fear for her as she gets older and it is having a huge impact on us as a family.
I struggle to keep my temper at the best of times. My wife and I argue and barely get any time to ourselves anymore because every evening is a battle to get her to sleep then we just collapse into bed ourselves. There is hardly any intimacy between us. Our eldest is confused as she doesn’t have the sister she used to get on so well with.
Quite honestly if I know life was going to be this hard I wouldn't have had a second child.
I am in the police and I spend every shift hoping beyond hope for a late incident to come in to tie me up so I don't have to go home as I can't cope with her.
I know how awful that sounds and I feel so guilty for having those thoughts.
I feel frustrated and resentful and am utterly exhausted.
I try so hard but am at my wits end.
Is there a light at the end of the tunnel as I just can't see one?
Due to Corona Virus everything has understandably stopped so her diagnosis and potential treatment had been delayed.
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Struggling for diagnosis and struggling to cope
10 replies
Whufc · 31/03/2020 21:43
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