DD's EEG does showa pattern that might indicate ealy lennox gastaut syndomre. Am devatstaed. Despite the brain damage and despite infantile spasms she has been intellectually normal. LGS always causes mental retardation.
We're off to hospital this evening to start injected steroids in an attempt to avert this.
I feel sick inside. Sick at what might lie ahead, sick that my baby might lose her personality and sick at the terrible side effects of this drug.
Life is just shitty
My son has (or had) Is his last eeg showed no hyps.....LGS is now my next fear. Is it possible that with these steriods that they may be able to cease the LGS or help towards controlling it and it effects.
Hi Louro. I've feared LGS for 3 years. DD' doc kept saying there was no chance because you just don't get LGS after 3 years seizure free. Usually the IS turns into LGS with no break.
They are slightly perplexed because she isn't having tonic seizures or absences. Nothing aprt from status/partial complexes at night, about 1 every 2 weeks.
Off to the hospital ina minute. Didn't sleep all night and now have stinking migraine with vomiting and aura and will have to sit on a vomit inducing bus for 45 mins.
Am feeling rather sorry for myself right now.