DS2 is 11. He has ehlers danlos syndrome and sensory processing disorder. He is academically very able but his body can't keep up which he finds very frustrating. He wants to do all the mainstream things that his friends do but he won't/can't pace himself and just carries on until he collapses on the floor. He has meltdowns due to tiredness and sensory overload. He can't cope with loud noises.
Mainstream activities like playschemes, sports clubs etc won't take him without a carer which is understandable but he's at the age where wheelchairs aren't cool, ear defenders aren't cool and having your mum stay with you for an activity definitely isn't cool.
My mum says I'm being too soft with him and he should be able to control himself by now. I'm trying to teach him to pace himself and sometimes it works but not very often. I carry snacks with me at all times which can sometimes help him when he is on the edge of a meltdown and in the holidays we make sure we only go out 3 times a week so he has plenty of resting time.
I've been taking him to lots of special needs activities this summer which has been great for him but then I've seen on facebook the photos of his school friends enjoying local playschemes and activity days together and it makes me feel sad for ds that he can't join in. I've got another child who has global development delay and in some ways it's easier with him because his cognitive and physical abilities match so he doesn't get frustrated.
Should I be doing more to try and make ds pace himself and manage his sensory overload better?
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Am I indulging my ds?
6 replies
elliejjtiny · 15/08/2019 13:50
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