Any of the counter medicine or natural remedies for hyper severe Autistic child?

(23 Posts)
WhatAMum01 Fri 26-Jul-19 06:14:52

Can anyone recommend anything which might work or has with experience worked?I posted yesterday about my son who is severely autistic and totally unmanageable now ,his vocal screeching is driving me crazy and there's no distracting him from it 24/7.

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WhatAMum01 Mon 29-Jul-19 23:16:11

Anyone ?

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SlipperySlope99 Tue 30-Jul-19 08:48:35

I’m feeling your pain here.
DS is 12 with SLD, sensory processing and ASD and very delayed speech and language.
I’m sitting here with a bruised nose due to being punched in the face yesterday and exhausted from him only sleeping from 11.15 until 3.30 this morning.
He’s been way much harder this week, constantly banging and jumping on the floor- bought him a trampette and not sure how much longer it will last, constant scripting from his favourite programmes, sleep patterns all over the place, but not a lot of it,and making grunting noises loudly.
All he wants to do is have the remote to access YouTube on the tv and the iPad, again for YouTube videos.
I’m not sure if his behaviour is ramping up as we’re going away on Saturday, he’s desperate to go, so maybe his excitement is manifesting. But I’m drained and at a loss.
He knows the effect his behaviour is having on me- rubbing my nose and saying sorry, saying mummy smile and be happy, cuddling me
It’s so hard, especially seeing all the happy families with children doing all sorts of lovely family stuff, which we can’t access.
We have just been offered access to a sen respite club which he has been to twice and seems to enjoy, but that’s only 2 hours per week.
No real help to offer, but just wanted you to know you’re not alone, it’s heartbreaking to not be able to help your child and also no one to help us.

Alwaysgrey Tue 30-Jul-19 08:50:33

I have two kids with asd and adhd. My youngest is 6 and like this. Hyper and a lot of high pitched screaming or screeches. I don’t have any real advice but wanted to let you know you’re not alone. I’d stick in some ear plugs.

WhatAMum01 Tue 30-Jul-19 09:13:14

@SlipperySlope99 it's so hard I really try and be optimistic and try not shut us all off but his behaviour is constant and relentless it's so draining, im constantly snappy and feel out of joy. All the money and all the science out there yet all these affected kids and no real help or medictation to help

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WhatAMum01 Tue 30-Jul-19 09:15:37

@Alwaysgrey I'm tempted to buy earplugs but have two other young kids who need my attention too.don't know how you cope with two children on the spectrum, you're amazing for finding the strength

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SlipperySlope99 Tue 30-Jul-19 09:22:23

Well he’s mega hyper but in a good and giggly mood, despite 4 hours sleep. He’s agreed to go for a long walk to a place nearby, should be quiet now and hopefully run off steam. He’s also been asking for the remote, but I’ve said no (took it with surprisingly good grace ) he’s got to earn 5 of his stars before he gets his hands on that today.
I go through phases of utter doom and gloom where I can’t see a way out of this- just surviving rather than living life, currently in one at the mo, but I just need one good day to lift it, I’m hoping it will be today

SlipperySlope99 Tue 30-Jul-19 09:31:38

Oh and he was never bothered about rewards before he started his secondary special school, but they have a star system and we’ve transferred it to home and it seems to work, most of the time

WhatAMum01 Tue 30-Jul-19 10:01:26

@slippery aww he sounds cute all giggly. My son just doesn't understand anything at all,can't communicate with him at all yet ,speech and language say he's not ready yet.he's at the mental stage of a 8month😢

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Alwaysgrey Tue 30-Jul-19 11:24:58

To be honest I fee hollowed out mostly. Just surviving. My mum asked me earlier why I looked so miserable. My oldest is 10 and finds parks boring whereas my youngest is 6 and needs to be out. Middle one with asd is 9 and would live on screens but does go out. But it’s all very hard work. I try to find places that are quiet especially if the weather isn’t great. My mum is also nagging me to take them on holiday and can’t understand why I’m not thrilled at this idea. We’ve never done a plan trip and if we go in the U.K. and it tips down we could’ve just stayed at home.

It’s a huge balancing act. Sometimes the kids miss out because sadly I can’t always cater for all of them. I just do my best which at times doesn’t feel at all good enough.

@WhatAMum01 how old is your son?

WhatAMum01 Tue 30-Jul-19 13:04:37

@Alwaysgrey totally know what you mean.it is a balancing act I have two normal children and their lives are totally ruled by how my 4 year old is.they get so embarrassed as he screams/moans grunts and flaps his hand nonstop when we are out and sits rocking in his pram or laughing incessantly. They actually said they hate him😣I feel like I've failed them all.motherhood has been filled with more lows than highs for me unfortunately. My asd son starts special school august I hope it changes him.I'm all out with my nonstop efforts.I spend all day running around stopping him climbing on furnished windows throwing the tv down biting any cable he can see chewing on anything and everything throwing cups of drinks and food on the floor.ive literally no time for my other kids or anything else.I'm existing to serve him by constant vigilance.

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Itwouldtakemuchmorethanthis Tue 30-Jul-19 17:17:23

Child proof at least some of the house. Feed him at table with a mat underneath. There isn’t medicine to cure him because he isn’t ill. He will be easier to live with when his needs are met and when he is happier. I’m so sorry you are all finding it so hard.

WhatAMum01 Thu 01-Aug-19 22:12:20

@Itwouldtakemuchmorethanthis I know he's not termed classically as ill but children who are severally autistic like my son do need something to help them focus or calm down or they'd never progress as they'd be prisoners to their condition of Autism. His needs are met as he constantly seeks out what he needs to do.

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atthepark Fri 02-Aug-19 09:15:26

I give my daughter omega3, probiotics and a multi-vitamin. It definitely helped calm her down and focus more and stopped the stimming as much.
It took about 12 weeks for all to build up in her system but the difference has been amazing even her school commented on how much more focused she was.

Itwouldtakemuchmorethanthis Fri 02-Aug-19 13:43:15

All children should take supplements as recommended by the nhs ( www.nhs.uk/conditions/pregnancy-and-baby/vitamins-for-children/ ) so if he isn’t taking them or eating a good diet then that will help as will exercise/sleep/sunlight. Really we found that focusing on supporting each part of his life experience improved everything. I don’t see my sons autism as an illness in anyway though so ignore if this doesn’t fit with you take on things.cake

WhatAMum01 Fri 02-Aug-19 15:56:59

@atthepark I give him omega 3 buy and multi vits will also try probiotic, thank you

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Firstimemam Sat 03-Aug-19 08:19:22

Hi @WhatAMum01,

No real advice but have you considered applying for an autism service dog? It can take a long time to get one but it's helped a lot of families out there xx

EggysMom Sat 03-Aug-19 11:42:31

I don't think I read your earlier post, but do you have someone who can give you a break, e.g. child's father, a relative? During the long summer holidays it can be particularly hard. We've only the one son, and we take it in turns to be his focus - weekdays I work so SAHD plays the main role; weekends I let DH escape as much as possible, have a lie in etc, , and I take over as main carer.

EggysMom Sat 03-Aug-19 11:43:32

Also... Epsom Salts smile I'm sure putting salts in our son's bath contributes to his calmer mood, as I can definitely tell when I've run out and he's not had them for a couple of weeks!

WhatAMum01 Sun 04-Aug-19 01:16:23

@EggysMom thanks will try Epsom salts. Husband works all hours to provide for 5 of us,he pulls his weight when home.feel like I'm being tugged at in all directions physically and emotionally, my other children need me too. I keep hearing of people saying their child eventually calmed down as they got older,there doesn't seem to be anything other than waiting it out with the patience of a saint,something I'm not.I hate the fact I get annoyed at him,feel so frustrated by him and at times feel like he's my captor in this life of ours.I know it's irrational and he's completely blameless, guess it's just the non stop stress of it all.

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Soumia Sun 11-Aug-19 15:28:48

Fresh coriander...Cilantro drops...helps a lot

Soumia Sun 11-Aug-19 15:33:41

Believe me coriander..Cilantro. helps a lot

Try also omega 3

danni0509 Wed 14-Aug-19 19:17:25

@WhatAMum01 thanks

Cup of Epsom salts in a hot bath every other bath & a dose of magnesium liquid every day also zinc drops & fish oils.

I buy all this off amazon. Spent years experimenting trying to find the right combo, if you want specific items let me know, happy to share!

Lush sleepy wash in the bath & lush sleepy cream on when out the bath.

Then he has melatonin every night. (Prescribed by his consultant)

Don't expect overnight miracles, takes time.

My ds is 5 and a half. (Asd, adhd & learning difficulties)

Do you get dla? Carers allowance? Disability elements of tax credits? All this helps to pay towards this stuff as it can get expensive.

He will get easier, even if just a little bit. When you have it hard all the time even just a small improvement makes the world of difference.

Ds is still difficult, he is very obviously autistic and has so many symptoms that it completely rules our life, some days I cry and wonder how I'm ever going to get through another day, but looking back to when he was 4 compared to now almost 2 years on he is definitely easier in some ways (but much harder in others) things change they honestly do.

Ds is verbal, although nothing like age appropriate. He has disordered speech, very speech delayed, lots of echolalia, no conversations, can just about answer yes / no questions, but can now communicate enough to get his basic needs met - want drink, want food, something is hurting him etc he couldn't at age 4.

Ds will be back to school in 3 weeks so will give me a recharge of my batteries again.

Look at these two books these are useful, particularly the raising a sensory smart child. (will add pics.)

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