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Here are some suggested organisations that offer expert advice on SN.

some honest answers please, im WORRIED about my dd.

(14 Posts)
lucyellensmum Thu 12-Jul-07 14:17:09

I am very worried about my little girl, ive posted before about her speech delay. I am worried re autism, she has been looked at before at 18m and the pead said no shes fine. Come back at two if speech still a problem. She is two next week and sppech is still bad, i have been having SALT but this is coming to an end now and i feel left in the lurch. She is a very sociable little girl but is quite shy too, if you see what i mean. She relates well to her family though. Just shy of strangers. LAtely she is becoming very rigid about her routines at bedtime etc. What has worried me more though is her walking, she was a late walker but in the past few weeks has started walking oddly and on tip toe, its not very pronounced but when i mentioned this to the SALT she said i should get her re reffered, so now im pulling my hair out now. I have been really down and had decided yesterday (my graduation) that was going to be a more positive person, but this has thrown my right off kilter again. I have a GP appointment on monday but my mind is going into overdrive, i wont look at any websites because i know i will scare myself senseless. My DD is such a happy wee soul, i can cope with SN because she is still her but what if she has something that is going to make her regress or something or stop being her. Please help.

lucyellensmum Thu 12-Jul-07 14:33:00



gess Thu 12-Jul-07 14:37:41

Is she pointing?? Esecially to things of interest.

The tip toe stuff comes up as it can go with dyspraixa (which often overlaps with communication disorders), or it can be a sign of being hypersensitive (sensory wise). I can also mean nothing; both ds2 and ds3 went through toe walking periods and are fine.

As you're still concerned I would definitely discuss as paed referral.

2 isn't that late speech wise btw- ds2 and ds3 (who don't shut up) were over 2 (ds2 well over 2- 2.8) before starting to talk properly. DS2 was completely incomprehensible until he was 2.8.

MuddlingThrough Thu 12-Jul-07 14:40:38

Hi Lucyellensmum,
I'm afraid I don't have any special knowledge here but didn't want your post to go unanswered. You say you've been feeling down, and I know that when I'm in that state of mind I find things to worry about. Shyness, a new odd walking habit and rigid routines could easily all be completely, completely healthy and normal. Two-year olds are control freaks and her bedtime rules could just be a way of asserting herself. Again, I've no special knowledge, but there isn't anything in your post that seems to say your daughter has any big problems.

expatinscotland Thu 12-Jul-07 14:43:24

DD1 has dyspraxia. She can't balance on her tip toes at all and cannot walk toe to heel, either. She also has a wide gait and hand flaps and leg spasms when she is excited.

Hope your GP helps you get referred to the paed.

lucyellensmum Thu 12-Jul-07 15:19:32

thanks everyone, dyspraxia is something i have thought of in the past, she was a bumshuffler, never rolled and is ambidexterous. I guess i am going to have to push this one, i suggested this to pead at original exam but she dismissed and said no dx for this at such young age. Im sorry to be paranoid about the autism thing, its just something that plays on my mind.

She does point gess and has for a while, i had ruled out the autism thing to be honest as she is so sociable, good eye contact etc, but then im not a doctor and have no experience of this at all.

Leilel Thu 12-Jul-07 17:03:16

Hi, shes still so young yet. for the vast majority of children these sorts of delays are just nuances and it really will all just sort itself with a bit of time. She may need a bit extra help, she may not, either way is OK.

mummytosteven Thu 12-Jul-07 20:11:56

agree with Gess - it's still early days, and a lot of children don't get going with talking till coming up to 3. but seeing as you are concerned, worth seeking the referral now, so that the appointment will be there if the speech doesn't magically resolve by 3.

in terms of SALT - is it private SALT you are having or NHS? As always I strongly recommend a Hanen course or failing that getting one of the books from ebay at giving very practical help in teaching you how to help your kids with communication.

lucyellensmum Thu 12-Jul-07 21:53:01

i think if it were just the speect i wouldnt be so worried. Have only been having NHS group speech therapy, I am thinking about going private although my DP has head in sand syndrome so trying to persuade him to spend money we dont have on something he refuses to believe DD needs is going to difficult. We are in south east england, does anyone have an idea of how much a private SALT would cost and would i get more from this than NHS, there was nothing concrete laid down today as it was the last session, they just said we would hear from them with regards the children being put back on the waiting list

gess Thu 12-Jul-07 23:10:17

private SALT is around 50 quid an hour. I've written about it here. You wouldn't have to have lots of sessions though, an assessment plus occasional ones might be enough to keep you on track.....

Have a look at the 'pre-diagnosis' but of my website as well. There may be some useful advice on that bit.

gess Thu 12-Jul-07 23:11:35

If you choose your private SALT carefully it can be a lot bettter than NHS SALT btw (because you can employ someone with lots of hands on experience, which bizarrel a lot of NHS SALTs don't have outside the usual standard run of the mill type problems.

mummytosteven Thu 12-Jul-07 23:57:55

For the initial assessment, report and program of things to do, it should cost £100 to £150. Then reviews thereafter (say 3 monthly) are £50.

There have been plenty of threads on here about toewalking - it does seem to be quite common without there being an developmental problems - IIRC hunkermunker posted that she still does toewalk!

CristinaTheAstonishing Fri 13-Jul-07 00:27:05

How is your DD's hearing? I know of several children with a hearing impairment whose first "diagnosis" was along the lines of autism. (The sociable at home but shy of strangers and slightly stubborn about some things sound similar to my 2.4 yo DD.)

Congratulations on your graduation. I know I've asked you before but what was it in?

lucyellensmum Fri 13-Jul-07 13:53:03

Christina, DD has had her hearing tested so its not her hearing. No toewalking today she is chosey about when she does it. I did a phd in fruitfly genetics, what seems a long time a ago, i actually finished two years ago, waited a year for my viva, missed the boat for graduation that year so graduated this week.

Thanks gess, i will definately have a look at your site over the weekend. Um, how is the report writing going? werent you supposed to be on a break can't keep away hey?

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