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Here are some suggested organisations that offer expert advice on special needs.

SN children

AIBU

5 replies

cherriesandoranges · 22/03/2019 22:41

My DH and I have 2 DS both with ASN and both different needs. I feel we are very alone in our daily fights/struggles to juggle everything. ((Nursery, school, jobs, businesses, money worries, clinic appointments, kids social issues. It's exhausting) AIBU to think our families should be trying to help and support us or even show a level of interest. My DH family (and my sister) turn up at the invitation of a party no probs and publicly declare how upset they are at our DS's diagnosis but in reality never show any interest of make an effort to see the children. They live less than a mile away) AIBU to be pissed off!

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BackforGood · 22/03/2019 22:51

People often don't understand / anticipate what you need.
You have to specifically ask them for what you would like them to do.

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cherriesandoranges · 22/03/2019 23:45

@BackforGood we're quite prescriptive and tell them it wd just be nice if they just spent some time with the kids. Unfortunately they are all too busy. ☹️

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BlankTimes · 23/03/2019 13:43

Sometimes families just can't cope with the idea of a child's needs that are outside NT.

Mine constantly minimise and have never attempted to understand my dd's conditions, despite me sending loads of information and even in the early days copies of assessments showing strengths and weaknesses etc. None of them have ever taken her out for even a couple of hours, never an offer to stay overnight with them, expect me to provide her food as she has some severe intolerances. Dd is adult now.

It hurts, but you're better off to create your own support network. Flowers

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starfishmummy · 23/03/2019 13:48

What Blanksays, create your own network.

We had the "just ask us if you need any help" but quickly realised that it was just words. Usually the offers came when they had an audience if their cronies who would then tell me how wonderful they are....

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cherriesandoranges · 23/03/2019 19:08

@starfishmummy @BlankTimes thankyou both. Good idea I think I will do this and create our own network.

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