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Seat and toy suggestions for recently blind 15 month old?(8 Posts)
My little boy (15 month) has recently lost his vision due to brain damage from a 2 hour long seizure that required intubation, with further persistent seizure post extubation.
This has been an overwhelmingly sad time for us all but mostly my baby who is terribly frightened right now. He was typically developing for his age prior to this event but his lack of vision has affected his mobility and depth perception.
Can anyone suggest some sensory toys and a safe comfy chair that he could sit and play with toys in?
Get in touch with RNIB
They will help you n so many ways.
am so sorry this has happened to your little one
I’m so sorry that this has happened to your ds. It must be very traumatic for you all. I hope you can get support for the family, does the nhs offer anything in this situation?
Oh my your poor family! And your lovely ds.
Have you been to your health visitor? I would be pushing for a referral to an educational psychologist. They can do an assessment to help you. I would contact local specialist schools and ask if they have any advice. You need some expert guidance during this tricky time. Having thought about it I would also want to see a speech and language specialist as he might need help with his language.
I’m not an expert but I would probably let him always have his favourite teddy or blanket with him. As comfort. I would talk and sing all the time.
I would try to give him lots of lovely sensory experiences. Sandpits. Stickle bricks in the bath. Indeed if he likes baths I would do them 2x a day. Swimming.
Do you have any charities that might help locally? We have someone called disability challengers. Someone like that.
He needs massive reassurance. Even though he is still little I would explain to him what happened. I would explain every day.
My heart goes out to you. Remember you are in the eye of the storm right now, more settled times will come. Xxx
Also, you need some benefit advice. Get to CAB. Or post on moneysavingexperts benefits board. You should be able to benefits for him and carer benefits for you. Get every penny you can and spend as much as you can on specialists to help you. Xx
Your poor baby, must be terrifying for him and so stressful for you. I have no experience but children are so resilient and at his age he will soon adapt to his new normal. I think any toys which have lovely tactile bits and make noise would be good, and maybe one of those beanbag armchairs to hold him comfortably? Wishing you both all the luck in the world
Your local authority should have a Visual support service, and also a home visiting service (sometimes known as portage). Ask your HV to find out about who can support you and get her to refer you. There will be expertise out there, don't tr and 'cope' alone.
Def seek specialist groups and advice. There are some great slings out here for toddlers if you wanted to start carrying him around for a bit to help with this assurance.