Retained Reflexes

[KisstheTeapot14]

Hello All,

DS (8) has moderate dyspraxia and unexplained dysfunctional voiding (needs to wee lots - urologist clinic in Sept to see if is overactive bladder).

Anyway, have heard of Retained Primitive Reflexes thought reading around dyspraxia and movement therapies. Anyone tried it?

Seems to be some anecdotal evidence but no scientific papers I can find. Please correct me if there are!

Am going to apply for funding to take DS - starts at around £500.

NHS OT we see was sitting firmly on the fence with subject when asked (I can understand - they have to be careful what they recommend based on evidence).

Any comments? Experiences? Things useful to know if we do try it?

Thanks x

[sickofsocalledexperts]

I thought it was a lot of utter bunkum but stand to be corrected

you have checked for Type 1 diabetes with the excess weeing?

[Emily7708]

Yes we did the retained reflex therapy a few months ago at the Sound Learning Centre in London. We also did AIT and light therapy at the same time, both of which help dyspraxia. For retained reflexes it’s an assessment which takes a couple of hours and they then give you exercises to do every day which takes about 20 minutes a day. It’s no quick fix, we will have to do this for a year and sometimes it’s like pulling teeth trying to get him to do it but I’ve noticed decent improvements already. If you search old posts by a poster called Indigo Bell, she goes into quite a lot of detail.

Re the dysfunctional voiding, my son had this among other things and it turned out to be PANS. Could that be a possibility?

[KisstheTeapot14]

Diabetes been checked (finally...after 4 years of contact with health professionals, it never occurred to me to do it before, but you would have thought they might have) He does not get thirsty, and recent bloods and urine tests all came back clear. Wees tiny amounts but often. Further scans pending on kidneys.

I just don't know if RPR is a form of snake oil... or not...

[Emily7708]

What works for one doesn’t work for others. I like to try everything available, finances permitting, others don’t.

I meant to say that after a fortnight doing retained reflexes my son was dry at night for the first time ever, aged 9. And he is much less clumsy and more spatially aware. It was worth the money for those things alone.

[KisstheTeapot14]

Thanks Emily, I am of the same opinion. Going to try to get some local funding as we are not cash rich at this point.

I think as long as it does no harm, then its worth a shot. The exercises can only help his motor skills even if it doesn't exactly do what it says on the tin.