Behavioural therapy/strategy advice needed please. Sorry long!

[mymatemax]

DS2 apart from his CP & physical problems has no real dx for his behavioral/social problems & therefore no ongoing support from CDC or CAMHS, his paed says he has very complex needs but difficult to categorise.
He doesn't fit the triad of imparement (sorry if that's not the correct term)for a dx of Autism but displays many of the typical behaviors they have said likely to be OCD & a social anxiety disorder.
He starts school in Sept & we have a few meetings lined up with the school (ms) next term & I really want to make sure we all have a consistent approach, I would like to be able to give them something more structured to work with rather than the more generalised strategies we use at the moment.
His main problems are, inability to cope with changes to routine & the need for sameness. transition from one thing to another eg getting dressed/undressed.
Sensory issues eg noises, strong or busy patterns. Struggles with his peers & can't stand any attention focused on him, along with Phobias that prompt extreme reaction but change frequently.
Can anyone recommend any progammes or literature etc that we can try at this late stage please.
Many thanks
Max x

[magsi]

Hi mymatemax

Our ds1 is 5 and has CP in the form of a severe right sided hemiplegia. He also has lots of social/behavourial problems almost exactly the same as your ds2. He is at present in a split placement with 2 days at ms and 3 at sn. This is stopping in September and he will be full-time in ms (with a 1;1 all day) (very worrying but necessary to give him a real 'go' at it). He cannot talk and uses an communication aid to talk with and signing. He has a lot of problems relating to this added frustration. Before ds1 started at ms we were really worried about all these issues and ds1's strange behaviour (just the same as you describe). All I did was printed out literature of 'Hemihelp' website about behaviourable problems and frustrations that come with hemiplegia. I just threw as much information and leaflets I could at them to try to make them understand that his insistance on wearing his coat, done up, in mid summer was not him being naughty but part of the hemiplegia. There is some great info for schools on the Hemihelp website specifically aimed at school. Why not literally write loads on his behaviour and his little 'isims' so they are prepared and can realise it is not him being naughty but his CP. Afterall, you as parents get first hand experience of him 24-7 and your report would be the most accurate of all. The school cannot ignore anything you wrote down on paper. I am sure they would appreciate it .

Good luck to your ds2.

[mymatemax]

Thanks Magsi,
Ive got a diary on the go for his paed so I could take the info from that. I think we get used to his ways & tend to forget his quirks.
IKWYM about the coat thing we have similar if anyone comes inside with a coat on he goes mad -they're for outdoors of course! Makes sense really.
DS's CP is mild diplegia so he is mobile, physically I think he will cope its all the rest that goes with it.
He is going full time ms & the school are funding 1to1 for the first school year as he has no statement, (another story entirely) the school have asked me to apply for the statement in Sept when they will support me, I do have confidence in the school they have a very good sn reputation & ds1 is in yr2 there.
I will hav alook at the websites & see what I can find I just feel I need to give them something more concrete to work with than the very loose advice from the phsych.
Thanks again
Max