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Autism Aspergers Help needed please

3 replies

mrsdarcey78 · 19/06/2017 10:30

Hi I have 3 kids we all have ehlers danlos syndrome and we all also have separate health conditions as well. I have a private appointment for all 3 of them with a paediatrician this week in London. I read a blog and some other bits from a lady and it was like a light bulb had gone on that they had aspergers. How likely is it to run in families? I have read recently about a connection between EDS and autism. We have sent off forms that the doctor is going to perform assessments on them etc. I home educate them so there is no input from schools etc, and I did not know a lot about autism before this. Could you tell me any experiences with aspergers, or autism and what led you to believe that it was that? Thank you :)

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MrsJoyOdell · 19/06/2017 13:26

I have one child diagnosed with Asperger's, one under assessment and two with EDS. I also have EDS and strongly believe there's a connection but I've never found any evidence.
My children are the poster kids for ASD - the national autism society website has a list of symptoms.

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TwoBobs · 19/06/2017 14:33

Two kids with EDS. One child diagnosed with ASD (formerly Aspergers) last week. The other child? Something's up! Don't think it's autism but possibly Dyspraxia.

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BlackeyedSusan · 20/06/2017 00:08

one high functioning asd child that is very bendy. (hypermobile but no problems)

one hypermobility syndrome child. being assessed for asd. (high funcitoning) I also suspect dyspraxia, but hey ho.

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