Hi,
My son who is 18 months suffered his first seizures last week, we don't know at the moment what caused them or if it is epilepsy or not.
He had a first seizure in the morning, tonic clonic which lasted around 3 minutes no temperature, I called a ambulance and we went to a and e, he was very sleepy after. They diagnosed him with a febrile convulsion although no temperature was noticed or recorded, I have dealt with febrile convulsions with my elder son so wasn't too worried.
We left a and e and was waiting outside for a lift when he had the second seizure, he went very rigid, eyes wide and fixed, respiratory rate low and was starting to go blue. We were then sent to the children's ward for observation.
He had a third one there which lasted around 4 minutes. Around a hour after he had the fourth, the seizure did not stop within 5 minutes so emergency procedures we're followed, he had 2 dòses of lorazepam and 2 doses of phenytoin, the seizure lasted for 24 minutes and he had stopped breathing, was sedated and put onto ventilation.
It was the most terrifying experience, he had a clear ct scan, negative lumbar puncture and blood tests so they have ruled out th3 seizures being caused by anything very serious.
We were admitted into intensive care and1 then onto a ward and we're in for a week.
He had a eeg but was distressed and was only on for a few minutes, that showed diffuse slow activity but no definite eleptiform activity, it needs to be redone and we are awaiting appt and for a mri and to go to a seizure clinic.
Dies anyone have any idea of what the eeg results could mean?
And I have read epilepsy is only diagnosed after 2 or more seizures, would his be counted as 1 as they all happened on the same day?
I don't really know what to expect and I find I'm becoming really anxious to it happening again as it was so frightening. His seizures were described as generalized tonic clonic.
Any input would be really appreciated.
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Epilepsy - does 4 seizures in one day count as 4 episodes or 1?
10 replies
mumofthreesmallmen3 · 26/04/2017 19:18
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26/04/2017 22:02
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27/04/2017 07:36
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28/04/2017 07:24
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