Many on these boards know me! My ds has a dx of ASC and sensory motor difficulties. He also has a typical spoken profile with some specific learning difficulties of which the specific areas come in the 'severe range' he also has some below average abilities in motor planning and processing.
From a young age ds had a hand preference. He met all his physical milestones fairly early in the average range.
He didn't crawl until about 6 weeks after he walked.
He always carried objects in his L hand against his body but could use both hands iyswim? He doesn't though have coordination with both and still struggles with simple tasks like using a knife and fork.
As a young child ds was very uncoordinated and clumsy. He frequently tripped up pavements and didn't instinctively put his hands out when he fell.
I asked his pead about dyspraxia but this wasn't actually followed up.
Ds was dx with autism at 10. He then saw the OT who said about motor planning and fine motor skills and also sensory stuff.
They picked up on how ds struggles with oral motor skills (he struggles to read aloud and you can see him struggling with reading, speaking and breathing formation of the task)
Ds has also seen a neurologist as he has muscle spasms just after falling asleep at night and they thought it might be seizures. EEG and MRI were clear - this still happens.
Ds has also been under the podiatrist for flat feet and Achilles' tendon issues/tight calves. Despite stretches this has remained unsolved. He was referred to a physio who agreed with me that ds has a marked difference in his muscle tone between L and R side. He did some reflex tests and asked about MRI. Then seemed to leave it saying usually ds presentation is common in children with hemipegic CP but a clear MRI would indicate otherwise.
I've also noted ds has retained a lot of primitive reflexes.
Ds swims for a club. I chose them because the are one of the disability clubs in my county and are known for their inclusive attitude. Although ASC doesn't come under disability swimming unless IQ is below 70 (which ds isn't)
They however are extremely concerned about the movements my ds has, his physical presentation and the range or way his movements present. Also that his left side tires so much more quickly and now he's getting stronger (he trains 4 hours a week!) that the difference is increasing.
They think he has something more than a sensory physical difference and think he'd be able to be classified under disability swimming and therefore attain a handicap - but he needs a diagnosis of a physical disability.
I'm quite a laid back person and so they've did they feel they can be open with me - but have simply said they have physically disabled classified swimmers with less pronounced physical difficulties than ds.
I'm not sure where to go from here. I'd obviously like ds to be given the opportunity to swim and achieve at swimming (which he is) but at the right level for him.
But it feels strange to question the professionals iyswim?
So should I maybe write to GP explaining I'd like a second look and could/should I get swimming club to be specific in their concerns?
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5 replies
youarenotkiddingme · 23/04/2017 13:22
OP posts:
zzzzz ·
23/04/2017 16:59
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