Not sure if this is the right place but other posts seemed kind and supportive. My baby has just been diagnosed with focal cerebral dysplasia and I'm feeling scared and overwhelmed.
He was initially diagnosed at 6 months of age (he's now 9 months) with unilateral spastic cerebral palsy due to some mild motor deficits in one arm. He recently had an MRI to confirm the diagnosis and it came back showing the dysplasia. We are waiting on an EEG and neurology referral.
I stupidly started googling and have upset myself. He has not had any seizures to my knowledge and appears to be developing normally, aside from the left arm. What I've read makes it sound like intractable seizures and behaviour problems are an inevitability. Some sites made it sound like his quality of life will be very poor.
Not even sure what I hope to get from this post, other than some sympathy? Has anyone else here received a similar diagnosis?
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Feeling broadsided
2 replies
Sundayspilot · 30/03/2017 18:29
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