EHCP... any point applying

(15 Posts)
Bookeatingboy Fri 24-Mar-17 14:54:53

DTS1 (ASD / ADHD) currently in YR4. He will meet the YR4 academic targets. Around 2 years ago we decided to try medication and this has helped him with impulse control and concentration (to a degree) so he now only has the school funded hours of support.

He is constantly "getting told off" for... talking/interrupting/shouting out/not waiting his turn/ wandering off... etc etc. He has a very short fuse and frustrations can lead him to lose his temper very quickly and although we have (thankfully, after much hard work at home) moved away from the physical aggression, the verbal aggression is still a constant, and I can see the older he gets the physical outbursts could quite easily return.

Although the school is good, I can tell from what they write in his communication book that they believe he's just not trying hard enough to control himself. If it helps to add some context here, he has a NT twin brother, who is often used as an example of an exemplary pupil by CT's and Head! This helps in that they can't pull bad parenting card with me, but doesn't help DTS1 with his self esteem when in school.

His self esteem is at rock bottom and he is constantly retreating into his ipad to get away from the world! Socially he is very behind and although he has friends, his interactions with them are very awkward at best. He is very immature compared to his peers and I can see him being a prime subject for bullying once in secondary school.

I've always been told that he would never get a statement/EHCP because he is not behind academically so I've never bothered to even apply.

Does anyone have a similar child and have managed to get an EHCP?

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Crusoe Fri 24-Mar-17 17:24:45

Sounds very very similar to my DS who is yr5 and is diagnosed ADHD but I'm sure has other difficulties too. He is academically very able and we were originally led to believe he stood no chance of an EHCP because he was meeting academic targets.
He is now at a new school who "manage him better" but his difficulties remain. I have spoken to an EHCP consultant who believes we can make a good case and have nothing to loose by trying.

Bodley Fri 24-Mar-17 18:47:00

And have school identified what causes him to shout out/wander off/lose his temper? Chances are there are concentration difficulties/sensory difficulties and his outbursts are related to anxiety. It blatantly isn't about him not trying hard enough, is it? How are they supporting him with all these issues? EHCPs are not just about achieving academically they are about his health and care needs too. You can apply, make sure you speak to IPSEA/NAS education advice line, they can give you good advice about how to make a good case, gather evidence etc.

Bookeatingboy Fri 24-Mar-17 21:41:13

To be honest Bodley I'm worn out with going through this every year with a different CT and a different approach, there is no continuity and it's like we are starting again every bloody year angry

The SENCO is trying to pacify me by saying she's going to do some refresher training with staff! I really am done.

I'm going to speak to IPSEA on Monday and as you say Crusoe we have nothing to lose by trying!

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Allthewaves Fri 24-Mar-17 22:28:55

I'm looking to try and get same for dc1 (8). Meds have become much less effective

tartanterror Fri 24-Mar-17 22:33:54

Don't get me started on the lack of continuity! Grrr...

Anyway we are currently in the assessment phase for an EHCP. I was also told that there was no chance that we would get anywhere.... but then school didn't really think/notice DS had ASD confused

Do you have any open NHS referrals? If not try to get some open and/re-opened and get a professional to write you a letter about supporting your DS' transition to secondary. You probably need to choose a school based on needs/expertise rather than difference - this is the one thing a school can't do on SEN Support and so it is a genuine reason for applying for an EHCP. Ideally you can get an NHS professional to say that they think your DS "may benefit from a plan" particularly in relation to secondary transfer. I think this is what helped us get an "agree to assess" when everyone else told us we would get nowhere.

I think lots of people are still stuck in the "statement" mindset. I think lots of ASD kids didn't qualify for help under that system if they were academically average or above. Under EHCP mental health/social & emotional SEN carry a decent weight so I think it benefits kids with ASD a lot. If you want to PM me your email address I could send you a copy of my application letter and you can try to adapt it if would help. Another kind mumsnetter sent me theirs, so I could do the same, if you come back and do similar?!

Bodley Sat 25-Mar-17 06:27:07

I know how you feel bookeatingboy, been there and it is soul destroying. My son has just been given an EHCP, like others, after having no support from school because we apparently didn't stand a chance of getting one. As other posters said, I managed to get several letters of support from various professionals which helped a lot. Go for it, hope things get better for your son.

Bookeatingboy Mon 27-Mar-17 08:28:06

tartan I'm going to send you a PM, thank you for your very kind offer of help flowers

Bodley I am going to give it a shot, did you use any private professionals or just NHS ones? Is your son behind academically?

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Bodley Mon 27-Mar-17 10:07:03

Bookeatingboy, no, he isn't behind academically, he did start school refusing though after not having his sensory/emotional needs recognised or accommodated for. The breakthrough came when we managed after some time to persuade school to refer him to OT, they referred him because his handwriting is terrible but from there it was a stepping stone to getting a sensory assessment and the OT we had was marvellous and advocated for us and wrote to support EHCP application. Although we hadn't seen paediatrician for a long time, we got an appointment with them and they also wrote supporting letter. we got it on the third try though, it was a case of building up evidence.

Wh0Kn0wsWhereTheTimeGoes Mon 27-Mar-17 11:19:44

Mine has AS and dyspraxia, not ADHD and met academic targets through primary but I was still successful with getting him a statement (applied in yr 5, finalised in yr 6). However I did have to use private EP, OT and SALT to get through two appeals. Also, he was very well supported in primary school but it still wasn't enough to meet his health and social needs. They did not support the statementing process at all, just repeatedly told me he'd never get one and that their support was adequate. It really wasn't though.

Bookeatingboy Mon 27-Mar-17 12:03:30

Thanks for the feedback Bodley interestingly ds's handwriting is also terrible and is always raised at IEP meetings.

He has had an OT assessment but not a sensory assessment as out county don't do these as part of the standard OT assessment. It is well documented that his senses are all heightened though so we know he needs one.

Interestingly we have a very honest CT this year and to the school's detriment she is writing daily that he is struggling with concentration, listening, shouting out, waiting his turn, following instructions etc She then write "You just need to try harder bookeatingboy" grin
Ah yes, despite his dx of ASD & ADHD and all of the associated difficulties with these conditions, all he needs to do is try harder... now why didn't we think of this!

In previous years none of his CT have been so honest, because they somehow believe this shows them in a bad light, and suggests they are incapable of doing their job. Which is crazy.

Whoknows thanks for the candid feedback relating to your ds. I know it wont be easy and I'm finding the starting process quite daunting but I guess we learn quickly once in the system so to speak.

I do have some funds if I need to use professionals but we see our paediatrician every six months since ds is medicated. So I will speak with her at our next appointment which will be quite soon.

Sadly we had another incident on Friday whereby he lost his temper with some boy who were tormenting/goading him and we had some name calling. These boys then told the TA, who told DS off and marched him straight off to see the CT, who also told him off.

Eventually when ds wouldn't calm down, they gave him an opportunity to speak and it transpired that these boys were winding ds up (they are sneaky enough to know when the TA/CT are not looking) and probably enjoy seeing DS lose it and get into trouble.

Of course I'm not using this as an excuse, and we have done some more role play at home to help him with this, but school believe the onus is all on DS... and it's not!

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Bodley Mon 27-Mar-17 13:25:39

Oh god bookeatingboy, so annoyed on your behalf. Just needs to try harder, yep, it's that simple. School need to be supporting him and helping him deal with kids like that, as well as helping those kids understand him. I was also going to say, do you have an autism outreach service/autism specialist teacher as they were also very supportive and gave support to school.

Bookeatingboy Mon 27-Mar-17 14:10:01

Bodley school have received lots of support from specialist teachers from the outreach services... all starts well then fades away if I don't keep on top of them. Then we start a new school year, new CT and back to square one with a different approach!

I consider myself quite a strong person but this constant merry go round is now beginning to affect my well being too! This constant change hardly inspires my views on what support might be like for him in secondary school. Hence my first post.

One example... Specialist teacher suggests a very simple laminate that stays with DS to show any other school staff who have dealings with him things they must do to help him achieve his best. It also has reminders ones for ds too. This would be great if they bothered to use it! Now I've raised it again the new CT has changed it (again) but this time it's all about was DS needs to do, nothing at all about what staff members need to do angry I could offer more examples but I guess you get the picture. Then I'm accused of being over invested in ds's education.

Sadly the SENCO (who is great) is being led the merry dance too and despite her best efforts things have gotten worse in her absence. Now she's back we may see some progress again but to be frank I've reached the end of the line with them.

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Bodley Mon 27-Mar-17 16:23:26

So bloody annoying. Unfortunately it depends on teachers and culture of school though doesn't it, if teachers have little knowledge or training, they won't understand what the point is or why they are doing it. Hope you can go for it and build case for your EHCP. I know what you mean, it does affect you, it's exhausting and horrible, you can't help but be affected. We were blatantly told it was our parenting and I was proud of myself for not rising to it... I hope you find a better secondary, I guess at least you now know what you are looking for. Good luck with the EHCP. I also found NAS education line, SOSSEN! And contact a family helpline very helpful with EHCP info and applications.

Bookeatingboy Mon 27-Mar-17 17:59:00

Thanks for the support Bodley

Good luck to you too and I hope the EHCP serves your son well!

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