I've just been told that, having finally been referred to a paediatrician, we now have a 5-6 month wait before we actually get an appointment...
My daughter is 2.5 with no spoken language, although she uses quite a few makaton signs. She has moments of 'absence' from time to time. Socially, she is behind in her development (although maybe that's because of the lack of verbal comms)
I think she might be hypermobile too - her thumb/finger/wrists are very bendy and she has a hard time walking and running. Her ankles and knees mean that she moves like a little puppet. She can't jump - not even one foot after the other, or off a step, iykwim.
I'm getting to the end of my patience with the system. Speech therapy won't see her until she has had the paed appointment. Neither will physio or OT. We've been asking for a paed referral since last May.
The HV told us to also get a referral to an audiologist to rule out a hearing problem (her hearing seems fine though) but today I found out that the GP 'forgot' and accidentally re-referred us to the paediatrician- for whom we're already on the list! So I need to go through the motions again to get to the audiologist.
Everything is going through my head - autistic spectrum? Mild CP? (She was born with polycytheamia, which she had for a week before it was sorted). I'm finding it so frustrating when EARLY intervention would be so helpful, and yet we cannot access anything.
I guess I'm wondering if anyone has seen similar symptoms and can give me some help/advice or if anyone knows a way to speed up the process.
Thanks
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10 replies
Photomummy16 · 10/03/2017 20:19
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10/03/2017 20:33
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10/03/2017 21:23
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10/03/2017 21:53
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