Am finding the whole school thing a bit hard atm. His teacher and the learning support staff have been great recently - really taken stuff on board and are helping him and recognising his many talents as well as his difficulties etc and he is doing well.
However, I feel really out of the loop because of his Aspergers and I feel really raw and hurt because of it.
For example, he went to a party on Sunday. That was great, he enjoyed it a lot because there was an magician, which he loves, so it was very structured. I was delighted he was invited, though I suspect a lot of it is because he has a September birthday and I had a party at my house right at the beginning of reception to which I invited all the children in his class at the time, so ensuring reciprocal invitations. However, there is a very active going back for tea/to play circuit in his class from which ds is emphatically not included. As all the other parents arrived to pick up from the party there was a big flurry of 'Oh, we must get Sam and Joe together this week!' 'Yes, great, Friday?' etc and I just stood there blinking away tears! Ds never gets invited and when I pluck up courage to ask someone (three times so far) and said, 'I know ds would love it if X could come and play one day, maybe next weeek?' I have got, 'Oh, yes, lovely. It would be nice to arrange something sometime', but nothing else is ever said or arranged. I don't want to force some poor unwilling kid or even an unwilling parent to pitch up at our house, so I don't know what to do. I feel under HUGE pressure because the paed who diagnosed ds said to me something like, 'It will be your job to create a social life for your ds'.
SO please, parents of other children who are dyspraxic, aspergers etc in mainstream, how do you cope? Does it get better as they get older, or - heaven help me - worse? Or do I just need a rhino hide?
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Feeling isolated due to ds's Aspergers. What, if anything, can I do?
59 replies
Aloha · 26/02/2007 11:32
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