Advanced search

Here some suggested organisations that offer expert advice on SN.

48 xxyy syndrome

(4 Posts)
throneofgames Fri 27-Jan-17 15:59:26

My beautiful 20 month old baby boy has just been diagnosed with xxyy and I can't cope. I can't take it in. It's so fucking unfair. He'll never have children. Probably won't live independently. What a hateful world we live in.

Heytheredelilah1987 Sat 28-Jan-17 19:33:34

I hope you're OK throne. I don't know anything about that syndrome. Hugs to you. You'll cope. It'll take adjustment xx

Ginandelderflower Sun 29-Jan-17 09:49:00

Throne that is so hard. What a horrible shock for you. One day at a time
brew flowers

Megatherium Mon 30-Jan-17 12:09:17

Try contacting Unique, which is a support group for families of children with rare chromosome disorders - , and Genetic Disorders UK.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now