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Here are some suggested organisations that offer expert advice on SN.

48 xxyy syndrome

(4 Posts)
throneofgames Fri 27-Jan-17 15:59:26

My beautiful 20 month old baby boy has just been diagnosed with xxyy and I can't cope. I can't take it in. It's so fucking unfair. He'll never have children. Probably won't live independently. What a hateful world we live in.

Heytheredelilah1987 Sat 28-Jan-17 19:33:34

I hope you're OK throne. I don't know anything about that syndrome. Hugs to you. You'll cope. It'll take adjustment xx

Ginandelderflower Sun 29-Jan-17 09:49:00

Throne that is so hard. What a horrible shock for you. One day at a time
brew flowers

Megatherium Mon 30-Jan-17 12:09:17

Try contacting Unique, which is a support group for families of children with rare chromosome disorders - , and Genetic Disorders UK.

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