My baby girl has a currently undiagnosed condition. It's been a year since this journey started with her. I have been fobbed off, been told to just wait and see. Can't access services as undiagnosed. Have had conflicting reports from various doctors.
I'm frustrated beyond belief.
Those with rare conditions or still undiagnosed please come and talk to me.
I have a thread of what's been happening so far, but it's rather long. www.mumsnet.com/Talk/special_needs/2557741-Dont-even-know-if-I-should-be-posting-here
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The problems with being undiagnosed
6 replies
misdee · 06/01/2017 06:59
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