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DLA for hfa 4 yr old?

(18 Posts)
RocketBaba Wed 28-Dec-16 20:29:19

If you don't mind disclosing do you/ did you get DLA for hfa at this age?

The diagnosis is high functioning autism, language good but not totally functional (comments a lot and plays but doesn't express needs), sensory issues, lots of rituals, food issues and poor sleep. Bright but difficult outdoors. Not in nursery. Known to CAMHS, audiology (glue ear, sometimes hearing aides), SALT for feeding, epilepsy clinic monitoring.

Low rate? I'm new to it all, but talking tonight it would help with financial side if things.

Did you discuss with professionals first?

zzzzz Thu 29-Dec-16 22:12:13

You fill out the form yourself, attach all your "evidence" and I would expect to get it in your position.

Fairylea Thu 29-Dec-16 22:20:13

Have a google of the "cerebra dla guide". It will talk you through it all. Dla isn't awarded based on diagnosis, it is based on how much care you give your child over and above an average child of the same age so you would need to emphasise all the things you do / adapt. Decision makers generally don't have any medical knowledge so you need to explain anything medical / diagnosis wise as if the person knows absolutely nothing about it.

Ineedmorepatience Fri 30-Dec-16 10:55:57

I agree with fairy use the cerebra guide and yes I think you would get DLA.

Make sure you are brutally honest about your Ds' needs, its a hard form to do but give it a go.

Good luck flowers

Shesinfashion Sat 31-Dec-16 17:53:09

My DD has what is probably HFA and has received DLA since age 5. It won't need reviewing until she is 19. We receive low rate mobility and middle rate care.

RocketBaba Sat 31-Dec-16 22:25:58

Thank you, DD is just 4 so mobility is out I've read since posting but I will try. The cerebra guide seems to be quite straight forward... you could write her little ways in forever on that form, particularly for routines!

Quite scary collating recent reports, speech, social comm clinic, CAMHS, audiology, dietetics, epilepsy clinic, general peadiatrics, ent, physio.... you don't realise until you get it all together!!!!

RocketBaba Sat 31-Dec-16 22:30:00

Thank you for the advice btw, it just seems mad in some ways associating the word disability with dd when she's just herself

Broached it with my mum who was very adamant I apply, she brought up two disabled children in a very bad financial situation without knowing about DLA and she's still annoyed no one told her..

Ineedmorepatience Sat 31-Dec-16 23:03:54

Your poor mum rocket! I am not surprised she is still annoyed.

Good luck with the form and don't forget to come back if you need any help.

Good luck flowers

Olympiathequeen Sun 01-Jan-17 15:18:24

If you feel she requires care over and above that required by a normally developing child of that age, then yes. Make sure it is her worse day you describe.

RocketBaba Sun 01-Jan-17 15:33:20

I've put things at the moment to reflect the range of times, e.g. Bedtime can take between 20min 2hours, night waking varies from a total of 1 for fifteen min to 5+ and 4 hours. Should I just put the worst? It an average? On a good day she sits in a buggy, a bad day she'd literally need holding away from roads and she'd hit and kick me as I tried to move her from car to house. She can be lovely, the main care is unpredictability so she needs to be held onto or arms reach. Occasionally she'll chat to people, though often she'll squeal under chairs

RocketBaba Sun 01-Jan-17 15:35:51

I'm finding the range of behaviour quite difficult to describe in the forms, she can be very high functioning but one consultant report catches a bad day- no eye contact, spinning, no acknowledgement in others and odd under furniture. Another describes a lovely little girl who doesn't use language functionally for needs but seems to have normal understanding and variable eye contact.

Frusso Sun 01-Jan-17 16:14:02

Message withdrawn at poster's request.

Fairylea Sun 01-Jan-17 16:34:41

You don't have to talk about high or low functioning in the dla forms. Most local authorities only diagnose as "asd" now because lots of people can have some aspects that make them higher functioning and some which they completely struggle with.

zzzzz Sun 01-Jan-17 18:24:17

Both your descriptions are "high functioning". It just means normal plus iq not how difficult things are for her. (It IS important for school but nowhere else really)

Describe the worst day in the last 6 weeks. Then try to forget it. It's terribly upsetting (for me anyway) but must be done.

lougle Sun 01-Jan-17 18:36:51

Don't forget to describe what you do, but also went you have to do it and what would happen if you didn't. When talking about night time waking, it's not just how long she is awake, it includes any time you have to stay awake listening for signs that she has settled.

Don't just put the worst, or the best. You can put descriptions of both and say that you tend to have 80% very bad days and 20% slightly better days.

frazzledbutcalm Tue 03-Jan-17 13:22:44

Good essential wording lougle .... bad days and better days. Apparently you're never to say bad days, good days.

RocketBaba Thu 05-Jan-17 13:09:34

Well, done and sent, possibly the road to madness that form. Felt like a fraud at points (dh had a laugh reminding me of that at 12,2 and 4am...)

-teacher of deaf assessment
-3 development assessments
-Asd report
-2 epilepsy clinic letters
- 2 dietician reports and prescription
-2 hospital pead reports
-salt report/ group invite letters
-CAMHS group letter
- home visit contact

... that's what I dug out as recent, hopefully straightford as it's all in agreement and a steady picture building up

zzzzz Thu 05-Jan-17 13:14:44

Well done. I still haven't done the renewal sad

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