Hi all. I'm in a state about my DS (12.) Nobody seems to be able to diagnose him and I've now had 7 years of battles and problems with his behaviour. I'm looking for some advice and pointers about what, if anything, I can do next and how to manage him. I admit rightly or wrongly I've tried hard over the years to actively seek a 'label' for him, but solely in order to try and adopt my parenting toolkit to support him. If I don't know what is 'wrong' - I can't seek to try and do this as well as I'd like to.
I'll try and be as a succinct as I can. At age 5 his biological father assaulted him at which point I left the relationship to keep him safe. Police, Social Services etc involved. DS puts his father on a pedestal and blames me for ruining the family. (Possible attachment issues created here?)
Throughout school he finds it hard to make friends, sabotages most relationships due to having to be in control, and gets violent and aggressive when people don't follow 'his rules.' These rules do not always follow social norms. He used to make train noises (he was obsessed with trains - CAMHS said control/safely blanket rather than ASD trait) instead of answering appropriately. Talks over teachers and peers and is desperate to always be the most knowledgeable, first at everything, sets himself unrealistically high standards but deep down seeks himself as a failure and 'rubbish at everything.' (Self esteem issues or ASD?) Has ripped up work, refuse to do homework, throw chairs, safe harm, etc.
He point blank will not discuss emotions, struggles with eye control, and gets extremely anxious. Behaviour at its worse during transitions, new or intense situations. Airports, crowded places or new social situations can be a nightmare - he runs away without telling anyone what is bothering him, bolts off and puts himself in danger at times with this. But not always - just sometimes, but we cannot seem to pinpoint a pattern as to what the triggers are.
Meltdowns are tremendous - physically refuses to move, throws himself on the floor, cries and screams (several times a week), throws things and hurts his siblings with no holding back at all. Meltdowns are at their worse when he has had a stressful day school, when hungry or tired. I have 5DC and DS is the eldest. The others do have their tantrums too of course, but nowhere near DS and they are over issues that I would see as 'logical' - whereas DS can have meltdowns over things that appear to be a normal request. Honestly, it can be as simple as 'please hang up your coat.'
Often says he feels suicidal, only lives for his i-pad and minecraft/pokemon games. We have the mother of all tantrums by far outside of 'normal' scales around his refusal to come off despite being given clear limits around its usage and countdowns to when he needs to put his devices away.
Now at high school, they have been great and have given him a 'timeout' card to use and weekly anger management meetings - is is bright. Passed his 11+ and is in a grammar school. Nowhere throughout school has any professional agreed he has ASD though. They agree he can be violent (assaulting other children, PE/sports is where he loses it most of all, 'trying to negotiate classroom boundaries' etc) but they all blame it on behavioural/emotional issues (and parenting too.) But how do you parent a child like this? I have read many many books, tried different techniques etc but have found the only way to manage him is a proactive approach to manage situational factors before the meltdown happens. All professionals agree he is highly manipulative (it took me a while to realise this,) and he cannot seem to show any remorse or take responsibility for his actions. It seems that academically he knows it is wrong, but he sees red and cannot control himself. I am worried he is seriously hurt somebody one day. He has taken knives to his younger brother and draws blood through fighting.
He is banned for the local sports centre for throwing equipment and being violent to other children. We cannot really visit anyone's houses as he cannot share, take turns, or be co-operative with other children, and normally ends up hitting them. We have removal of privileges and other consequences but it doesn't make a difference.
He has had counselling (three times,) has been assessed by CAMHS for ASD who said it was inconclusive, and has more recently had a Targeted Youth Support Worker. He refused to engage with her as rebuffed all her questions with 'smart' answers where he picks apart the grammar or sentence structure of what is being said to avoid answering or was too rude and abrupt to make the sessions worthwhile. (he is like this with everyone) So that support is no longer in place.
I personally feel he has ASD of some form - PDA in particular, but others say there is nothing wrong with him aside from being naughty (thanks!) or that this is all a result of his father assaulting him. I think he had underlying ASD which made what happened with his father harder for him to cope with. We are waiting for CAMHS to reopen a case for him, but I'm thinking in the New Year to try and see someone privately. The whole situation is very complex and I try so hard to unpick it, but I really worry for him. My friend is a student social worker and she commented that she didn't feel he'd ever be able to have a relationship or hold down a job with out being abusive. This is course is heart aching.
Any ideas as to what approaches work?
Here are some suggested organisations that offer expert advice on special needs.
SN children
'Manipulative' or special needs?
UmmBum · 28/12/2016 12:39
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