What do you find hard about having a little one with High Functioning Autism?

[Blossom4538]

Hi all!
As per title really.....

[Blossom4538]

Just a discussion really! I am finding it pretty hard at the moment with some of DDs behaviour around her friends family and her lack of interaction, her aggression towards me and the food fussiness - most likely due to sensory struggles. Also, tricky that she won't use public toilets.

I fully appreciate it could be more serious.

So, just a vent and discussion 😊

[Shesinfashion]

For me it's the repetitive questions. At the moment it is how many days till Xmas. My daughter asks me this several times a day!

[Shesinfashion]

Zzzz, your reply appeared a little harsh.

[TalkingSheds]

They're frustrations and meltdowns when things aren't going their way, and their little reasoning ability, because it has to be his way or no way.

Zzzz I too thought your initial reaction a bit harsh, I felt the OP was an opening for discussion.

[Shesinfashion]

It's the way you express yourself at times Zzzz. It puts me off asking certain questions here as I worry I'll be given short shrift.

[Shesinfashion]

OP I also find my DD's fears difficult to manage. She currently has a complete terror of rain and wind at night. She asks me to confirm constantly that it won't rain tonight or tomorrow night or the night after that.
She always has a fear of the moment. We have previously had terror over fireworks, ovens, the entire CBeebies channel, gardens and her step grandmother which was awkward and embarrassing for all concerned.

[Ineedmorepatience]

zzzzz Please dont stop posting, clearly these are new posters who havent benefitted from your insight and support for years.

People are quick to jump on the bandwagon, seriously people!

[Ineedmorepatience]

OP we found the lack of understanding in schools very hard!

My Dd3 is 14 now and we have grown together with her Asd, we muddle along and have good days and bad days. Some days everything is hard and others everything is easy. It all depends on anxiety levels for us.

Good luck

[Shesinfashion]

My DD has just had a huge crying fit because I tied her hair up in two pigtails instead of one. She has lovely shoulder length hair and insists in having ONE pigtail in at ALL times. I find it really hard to understand what the bloody problem is, I'll admit!!

[Feelinglikeafailure]

At the moment it's Time. How many minutes is this movie? How many minutes to put my shoes on? How many minutes to make a sandwich.
He literally wants to know how many minutes everything takes to do! It's driving me batty!

[Ineedmorepatience]

Do you mean one pony tail as in down the back She?

If so my Dd3 is the same, she has tied her hair up the same way everyday for about 10 yrs! Her pony tail is currently blue but it never ever gets left out of a bobble! Its a sensory thing for her.

[pastizzi]

It was unnecessarily harsh to ask why op was posting. And certainly not 'putting the boot in' to ask why.

I know many who have left this board because certain posters dominate with their strident views on almost every single thread, and their overuse of the passive aggressive/ patronising emoticon. No one owns the board and no one is beyond criticism just because they have been around for a long time.

[pastizzi]

Not 'putting the boot in' to say that it was a harsh response, I meant. It was then close to bullying for other posters to close rank

[KimmySchmidtsSmile]

OP's was a legitimate question and unless it was deemed to be a journo asking why seems a sceptical reply unless it was because OP had not provided her own personal details. Also yes it's tough for the kids but tell that to the parent on her knees the other day desperate to vent who posted in mental health and only got three replies. Should I redirect her here or not bother?

[Ineedmorepatience]

HA! I have rarely if ever seen anyone dominate this board!

Ooo, maybe its me!? Who knows!

What I do know is that I rely on the faces to help me express what I am saying, as someone with autism issues I find them helpful!

[Ineedmorepatience]

kimmy of course you should send her here, we have collectively loads of ideas and suggestions that have helped many many people over the years. I try to pay forward what I have learned from these boards in other places as well as on here.

If we seem to be child centred thats because we have been through the tough times and realised that the way forward is get the support right for our kids and then our lives can improve imeasurably.

[Shesinfashion]

Inneedofpatience, yes, that's exactly what I meant. My DD insists on one ponytail down the back. There can be no variation from this, not even an added hair grip. As soon as her hair is washed and still wet, it must be back in the bobble.
Isn't it ok to off load our struggles here without always needing a solution?

[Shesinfashion]

I think there's a fine line in the written word between straightforward and harsh. Sometimes it isn't always clear which is which from a particular poster.