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What do you find hard about having a little one with High Functioning Autism?

(62 Posts)
Blossom4538 Fri 16-Dec-16 18:09:18

Hi all!
As per title really.....

zzzzz Fri 16-Dec-16 18:59:42

Why do you want to know?

Blossom4538 Fri 16-Dec-16 19:10:32

Just a discussion really! I am finding it pretty hard at the moment with some of DDs behaviour around her friends family and her lack of interaction, her aggression towards me and the food fussiness - most likely due to sensory struggles. Also, tricky that she won't use public toilets.

I fully appreciate it could be more serious.

So, just a vent and discussion 😊

Shesinfashion Fri 16-Dec-16 23:45:54

For me it's the repetitive questions. At the moment it is how many days till Xmas. My daughter asks me this several times a day!

Shesinfashion Fri 16-Dec-16 23:46:33

Zzzz, your reply appeared a little harsh.

zzzzz Sat 17-Dec-16 07:35:47

It isn't harsh to ask someone why they want to know something confused. It does help you focus on what sort of you information they are looking for and if you would like to share it.

It's probably best to respond to the OP rather than critiquing other posters responses.

TalkingSheds Sat 17-Dec-16 07:40:22

They're frustrations and meltdowns when things aren't going their way, and their little reasoning ability, because it has to be his way or no way.

Zzzz I too thought your initial reaction a bit harsh, I felt the OP was an opening for discussion.

Shesinfashion Sat 17-Dec-16 10:05:34

It's the way you express yourself at times Zzzz. It puts me off asking certain questions here as I worry I'll be given short shrift.

Shesinfashion Sat 17-Dec-16 10:09:28

OP I also find my DD's fears difficult to manage. She currently has a complete terror of rain and wind at night. She asks me to confirm constantly that it won't rain tonight or tomorrow night or the night after that.
She always has a fear of the moment. We have previously had terror over fireworks, ovens, the entire CBeebies channel, gardens and her step grandmother which was awkward and embarrassing for all concerned.

zzzzz Sat 17-Dec-16 11:41:57

Please stop. Has it crossed your mind that your posts telling me what IS and isn't ok to post might be putting me off posting?

I've posted on MN for well over a decade and on the SN board for about 7 years.

Your post has made me feel really unwelcome and unlinked.

zzzzz Sat 17-Dec-16 11:42:53

Disliked. Apologies it's hard to express myself.

Ineedmorepatience Sat 17-Dec-16 11:55:01

zzzzz Please dont stop posting, clearly these are new posters who havent benefitted from your insight and support for years.

People are quick to jump on the bandwagon, seriously people!

Ineedmorepatience Sat 17-Dec-16 11:57:43

OP we found the lack of understanding in schools very hard!

My Dd3 is 14 now and we have grown together with her Asd, we muddle along and have good days and bad days. Some days everything is hard and others everything is easy. It all depends on anxiety levels for us.

Good luck smile

Shesinfashion Sat 17-Dec-16 13:11:01

My DD has just had a huge crying fit because I tied her hair up in two pigtails instead of one. She has lovely shoulder length hair and insists in having ONE pigtail in at ALL times. I find it really hard to understand what the bloody problem is, I'll admit!!

Feelinglikeafailure Sat 17-Dec-16 13:17:52

At the moment it's Time. How many minutes is this movie? How many minutes to put my shoes on? How many minutes to make a sandwich.
He literally wants to know how many minutes everything takes to do! It's driving me batty!

Ineedmorepatience Sat 17-Dec-16 15:38:15

Do you mean one pony tail as in down the back She?

If so my Dd3 is the same, she has tied her hair up the same way everyday for about 10 yrs! Her pony tail is currently blue but it never ever gets left out of a bobble! Its a sensory thing for her.

PolterGoose Sat 17-Dec-16 16:55:31

Message withdrawn at poster's request.

pastizzi Sat 17-Dec-16 17:45:25

It was unnecessarily harsh to ask why op was posting. And certainly not 'putting the boot in' to ask why.

I know many who have left this board because certain posters dominate with their strident views on almost every single thread, and their overuse of the passive aggressive/ patronising confused emoticon. No one owns the board and no one is beyond criticism just because they have been around for a long time.

pastizzi Sat 17-Dec-16 17:46:57

Not 'putting the boot in' to say that it was a harsh response, I meant. It was then close to bullying for other posters to close rank

KimmySchmidtsSmile Sat 17-Dec-16 18:01:32

OP's was a legitimate question and unless it was deemed to be a journo asking why seems a sceptical reply unless it was because OP had not provided her own personal details. Also yes it's tough for the kids but tell that to the parent on her knees the other day desperate to vent who posted in mental health and only got three replies. Should I redirect her here or not bother?

Ineedmorepatience Sat 17-Dec-16 18:04:52

HA! I have rarely if ever seen anyone dominate this board!

Ooo, maybe its me!? Who knows!

What I do know is that I rely on the faces to help me express what I am saying, as someone with autism issues I find them helpful!

PolterGoose Sat 17-Dec-16 18:07:29

Message withdrawn at poster's request.

Ineedmorepatience Sat 17-Dec-16 18:10:14

kimmy of course you should send her here, we have collectively loads of ideas and suggestions that have helped many many people over the years. I try to pay forward what I have learned from these boards in other places as well as on here.

If we seem to be child centred thats because we have been through the tough times and realised that the way forward is get the support right for our kids and then our lives can improve imeasurably.

Shesinfashion Sat 17-Dec-16 18:16:36

Inneedofpatience, yes, that's exactly what I meant. My DD insists on one ponytail down the back. There can be no variation from this, not even an added hair grip. As soon as her hair is washed and still wet, it must be back in the bobble.
Isn't it ok to off load our struggles here without always needing a solution?

Shesinfashion Sat 17-Dec-16 18:18:35

I think there's a fine line in the written word between straightforward and harsh. Sometimes it isn't always clear which is which from a particular poster.

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