Hi. Just having a bad day so feeling a bit sad/ having a moan sorry. It's probably also long and waffle sorry.
I feel like we are going round and round in circles with regards to my daughters diagnosis of ASD. It's been 18 months and it's no closer and then today I discovered that our LA has changed it so that there is no longer a SALT pathway to diagnosis. We've been on this pathway since March, including a long and very draining initial assessment meeting with SALT in August that was supposed to be followed up by an observation in school this term.
We are now being told that a) they've lost the GARS questionnaires we handed in 6 months ago so they need redoing and b) she might be observed in Jan and this will then be sent back to Paed. This is the same Paed that met her for 5 mins in Jan, asked her a very simple question about Gretel from Hansel and Gretel (she's a gifted reader so could answer the Q as we've worked on character emotion Qs) and then said she might be but he wasn't giving a diagnosis and closed her case ☹️️
I'm the mean time she gets sadder and more negative about herself and doesn't understand why she's 'different' to other girls. Added to this she got a dysgraphia diagnosis in April and that's causing her anxiety too.
I'm so worried about secondary school and really feel that without a formal diagnosis, she won't get the extra support she needs ☹️️ It doesn't help that through this process, I have been smacked in the face with just how on the spectrum I am and I feel guilty that her struggles are my fault (irrational I know but still)
I'm sorry this is so long and not sure how anyone can help but needed a sympathetic ear/eye without being dismissed.
Thanks if you read this far
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11 replies
JumpingJetFlash · 02/12/2016 15:52
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