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(18 Posts)
BeckerLleytonNever Sat 24-Sep-16 09:49:44

My DC has just turned 16. I know this is SN children but as my DC has a mental age of 7 shes a child rreally, plus, theres more traffic on this site plus youll all get this at some point.

I was sent the PIP form for my DC a month ago,, filled it in and sent it.

A week later a woman from the DWP came round and saw my DC for herself. My DC went into meltdown with her there.

This morning ive received a letter saying her DLA is ending and if I want to claim pip for her I must ring them.

of COURSE I receive a letter on a Saturday morning and their offices are shut all weekend so now I worry and worry till Monday and then and IF I can get through on the phone to them.

How can they do this to us????????

they SAW my DC , Ive sent the complete from and they STILL say I have to contact them to claim PIP???????

and that she needs to talk to them onb the phone when she cant commicate on the phone as it is? I TOLD this woman that, the one from DWP. I TOLD her Im her voice and I have to do and say everything for her..

IM feeling very sick,ive thrown up 3 times now,and im going to be like this all fucking weekend. my DCs medical probs (many) are getting worse as she gets older and this is how they treat us.

Please Im desperate for advice as to what to do, and how to fight this. Ive got more than enough to do in caring and seeing to her needs and problems without this added stress. Im worrying myself sick.

she has severe learning difficulties, severe ASD, severe mobility problems -although according to them she fine and doesn't need a wheelchair yet ive had to find a travel one for her as she cant walk more than a few steps.

shes also got tourettes, ODD (shes adopted by me), a history of mental health and physcotic issues due to her bloodline, was ubused sexually physically and mentally by birth parents before taken into care, I could go on.

the DWP and everone else involved KNOW all this.

yet Im the one who deals withj eberything, no cone loves a child more thatn I do with mine, and we get treasted like fucking shit by the government who should be held accountable for their crimes against disabled.

Help! ive asked a disability network person for advice too, but I have no cone else to talk to. cahms are shit, SS made things worse for DC, the GP wont take me seriously because DCs not my blood.

BeckerLleytonNever Sat 24-Sep-16 09:52:10

Ill tune inlater,when I can as I have to now see to my DCs toileting/dressing/eating and everything else to get through the day.

thank you if can reply.

LIZS Sat 24-Sep-16 09:53:16

Are you sure it isn't just one system failing to pick up that you have already made an application to transfer to pip, rather than it has been refused?

coffeemaker5 Sat 24-Sep-16 10:00:31

I would assume that the DLA computer didn't communicate effectively with the PIP. It's not a refusal, just saying Dla is ending. probably some kind of standard letter.

PolterGoose Sat 24-Sep-16 10:07:38

Message withdrawn at poster's request.

PolterGoose Sat 24-Sep-16 10:08:59

Message withdrawn at poster's request.

PolterGoose Sat 24-Sep-16 10:09:32

Message withdrawn at poster's request.

BeckerLleytonNever Sat 24-Sep-16 16:34:51

ThANK s for replies.

I was sent form to fill in first, then dwp woman came round. only this morning I receive letter saying theyre stopping DLA.

I know the pip was coming in after DC was 16, but after ive done all the filling in and sending I receive THIS?

I haven't been told of any phone calls/visits whatever.
Im a single mum and very very vulnerable and feel as if the bloody worlds against us.

its not poor DCs fault shes disabled. Im disabled myself yet don't claim DLA, only carers allowance. she got lifelong disabilities and needs LIFELONG care. I sent them also with the filled PIP a headed letter from the GP stating every single one of her medical problems.

Im sorry, I know im panicking, I haven't been able to eat, and trying my best to get through the ritual of DCs routine and meds and things.

and now fucking corbyn stays in a party that's supposed to care about the poor and needy and disabled, yet all he does ois go on MN and say what his fucking fave biscuit is!

so the tories will keep on being around foreve and keep taking away from those who need help most.

Im at the end mof my tether, we cant take any more of this, we already struggle so much financially and otherwise.

BeckerLleytonNever Sat 24-Sep-16 16:39:18

sorry, I have to loo off again to see to Dc jyst came on to see if I had any replies.
Ill have to try again tomorrow if I can get a bit of credit (Im on a PAYG dongle, I cant afford broadband)for the PC (a cranky old one).

BeckerLleytonNever Sat 24-Sep-16 16:40:20

fuck, LOG off again. although Armitage shanks and I have had a long meeting mtoday!

BeckerLleytonNever Mon 26-Sep-16 15:56:30

I had to ring DWP this morning after a stressful weekend worrying about it,

I had a right royal rant at them, its not fair isn't it? I had a rant at them about benefit cheats, and more, and all the bloody brick walls we as carers and disabled face every bloody day to extract a penny from them.

they really should be punishable and answer for their discriminateion, because that's exactly what it is.
now awaiting an assessment, more bloody waiting around.

poor DC not understanding anything abolut it and im trying my best to keep a happy face for her.

cant even bloody spell properly as im hurrying my typing as I need to see to her needs asap.

thanks again for replies. and good luck with yours.

LIZS Mon 26-Sep-16 16:01:18

What did they actually say?

BeckerLleytonNever Mon 26-Sep-16 16:13:15

the formula they say theyre telling everyone - a visit from an assessor (more stress0, even though I said yes, come round, see for yourself how DC is, I have nothing to hide.

THEN another form to fill in, THEN another assessment, THEN I get an answer wether DC is entitled (I hate that word!) to PIP, personal indepandance -which she can never be, lifelong care required, ao wtf have they termed this as that?

so that's the rest of the year sorted, stress stress and more stress, couldn't even celebrate her birthday a milestone age (even though shes mentally younger) because of all this.

seriously. bloody fuckers. they make you think THEY are doing YOU a favour of ''allowing'' you/the child to have some money, pretty please, please.

LIZS Mon 26-Sep-16 16:19:10

So you've had the first assessor round and submitted the form?

MeirAya Mon 26-Sep-16 22:15:58

She has an EHCP, I'm guessing?

And you have a decent amount of medical paperwork?

plus professional opinions saying
1) needs 24h care
2) can't walk 20 metres
3) doesn't have capability to handle DWP stuff etc herself?

With that lot, it's unusual to need much face to face assessment - maybe a look to make sure she exists, but that's it

Have a look at "court of protection" while you're gathering all this crap- as most of it can be recycled for that too. If you get logged now as her appointed deputy for both finance and care/health/welfare, it'll save you a world of pain on her 18th birthday

MeirAya Mon 26-Sep-16 22:21:42

DWP can be crap but this is a bit beyond the norm.

Reading through again, I wonder if they're acting bizarrely because they or Royal Mail have somehow just mislaid your enormous recent PIP form? There is a big backlog so it may be sat waiting for scanning.

If it's gone astray but you have proof of posting & a spare copy of it all, they should treat it as received on the day they 'should' have got it. Otherwise the clock starts ticking from sending it the second time...

BertPuttocks Mon 26-Sep-16 22:27:05

If the visitor said they were from the DWP then it's unlikely that it was an actual PIP assessment. My DS has just had his and the info for it came directly from Crapita (in a white envelope rather than the usual brown envelope of doom).

Whatever the reason for the mix-up, I'm sorry you're going through it all. It's a hideous system. flowers

BeckerLleytonNever Tue 27-Sep-16 16:10:31

unforch I didn't send it registered, ill do that next time, they usually ARE crap at finding things.

Ive got a whole cupbosrd full of medical paperwork and evidence.

they should have it too, so should all the relevant 'services' involved.

I have someone from a registered disability support group coming round to help me with all this (I have no one otherwise) plus yet another docs apt tomorrow. poor Dc hates being 'prodded and poked' all the time but what else can I do, she needs medical attention all the time.
Just today theres was another major maltdowen in town. its embarrassing.

Its not her fault she has meltdowns, its her med probs, but pwople just tut and judge and never think I have to deal with her 24/7, they see her for 5 seconds.

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