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Pee in bed - wwyd? 6.5 with non verbal ASD

(13 Posts)
eskimomama Thu 28-Jul-16 10:20:10

My 6.5 yo DD has autism, non verbal, and started having pee accidents in bed this summer. Almost every night now. I think it happens when she wakes up at some point between 6am and 7 am. Sometimes it's at 2am...
I've a mattress protection sheet but I still need to wash her bedding every day and while it's ok in the summer holidays it won't be ok for very long.

I've tried the following:
- limit liquids after 6pm
- toilet just before going to bed
- brought back her old potty in the bedroom as she doesn't/can't ask for toilet during the night. (she won't use it anymore)
- get up as soon as I hear her awake at any point at night (which is tough!) to take to the toilet asap (it's usually too late)

Should I reintroduce night time nappies?? I'm afraid she won't accept to wear them again, and will take them off as soon as I close her door and have accidents later.

I thought she might have been constipated (as it can cause issues with bladder control) but GP said she isn't. She's had poo accidents during the day lately but we've been working on it and it's much better.
No pee accidents during the day. Or exceptionally.

I think it's a mixture of not controlling her bladder when she wakes up and not asking for a trip to the toilet when she's awake in her bedroom and we're all asleep.

thanks for any suggestions

PolterGoose Thu 28-Jul-16 10:54:42

Message withdrawn at poster's request.

eskimomama Thu 28-Jul-16 13:44:35

Thanks - I saw on amazon Pampers have big children pulls ups (underjams or something). I'll try a small pack to see... So annoyed having to go back to that, almost 3 years after giving them up... sad

PolterGoose Thu 28-Jul-16 13:48:23

Message withdrawn at poster's request.

LaughingHyena Thu 28-Jul-16 17:08:15

Sleep is so often a problem here, anything that means I get a bit more is a bonus. If that meant going back to pull ups I think I'd give it a try.

Most supermarkets stock underjams/dry nights, we found we had to size up rather earlier than the ages on the pack suggested, so might be worth going for the bigger ones if you are close to the end.

We use 2 thin summer duvets in the one cover in the winter, fits in the washer that bit more easily and drys quicker. In summer I don't even bother taking the cover off, just wash the whole lot together.

Amazon have waterproof duvets, which I've been thinking might be a good bet next time I need to replace it.

eskimomama Thu 28-Jul-16 20:50:14

thanks both.
I can see I'm not the only one whose secret best friend is the washing machine wink
Polter I know what you mean for the patterns, I can see some things from last summer repeating (picky eating, meltdowns when bored, etc.) and I'm better at dealing with those. But I really thought potty training was done! So annoying. Useful to see it's actually part of the whole autism theme though and not just another hassle out of nowhere. ie we can handle it much better if we see it as a back & forth pattern rather than just laziness or something.

PolterGoose Thu 28-Jul-16 20:55:59

Message withdrawn at poster's request.

zzzzz Fri 29-Jul-16 18:55:13

I too would get up and take her at six.
I would also give her a way of asking for the toilet. She could ring a bell/blow a whistle or (better from a learning speech point of view) have a button to press (keezy app is free and gives you 8 recordable buttons) pre recorded with "please may I go to the toilet" to be pressed.
A towel over a bin bag is the best bed protector and you can layer them up eg mattress, bin bag, towel, sheet, bin bag, towel sheet etc etc
Walking, swimming, trampoline etc build up muscle which help physically. Avoid acidic drinks.

eskimomama Fri 29-Jul-16 21:13:00

funny you say that zzzz as she cannot stop going on the trampoline this summer!! (good for my own pelvic muscle too but that's another story wink )

good suggestions for the buttons - we have a PECS card for the toilet during the day (at school or elsewhere, as she goes herself at home during the day, with help), but obviously that's zero use at night.

Re: bin bags, won't it make her sweaty? I use the mattress protector from IKEA made with cotton and polyurethane, but it's been washed so much I think it's leaking a bit now.
First night with the big kid pull up... she didn't reject it immediately... but lets see the state of the bed tomorrow morning.

zzzzz Sat 30-Jul-16 01:03:02

Personally I wouldn't go back to nappies, as I would rather wash sheets and wake up more regularly.
As far as sweatiness goes, you are really lying on a towel so not particularly (nb I have 5 children and am naturally and from necessity averse to spending money so there may be commercial products that work but after many bedpad/plastic sheet purchases etc the bin bag towel solution works for us).

I think you might have hit on your problem though. Could it be she's hot at night? Reduce bedding and add air con if you can (best white noise ever) and you may find it all just disappears.

SalemsLott Sat 30-Jul-16 01:13:35

Kylie bed protectors are very good. I use them for ASD dd 9, who wets occaisionally. I have the washable bed mat that goes on top of the sheet.

eskimomama Sat 30-Jul-16 14:55:05

she's potentially too hot yes. I have a small fan in her room, also for white noise. If I use only a sheet she will just wrap herself fully under it (ie danger), last year I purchased the lightest summer duvet I could find and it seems to work, but she wouldn't tell me if she was too hot.

Pull up failed last night. She removed it at some point, threw it on the side of the bed and had a pee accident. I think it happened in the middle of the night as the bedding wasn't soaked/warm and she went for a wee in the loo at 7.30 when she got up. I'll try again tonight.

I've the cleanest bed sheets in the neighbourhood!

eskimomama Sat 30-Jul-16 14:57:35

thanks salemslott for the suggestion, didn't know this brand. Seems like less washing overall.

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