Aside from DH and DD1s dad (my ex) I have no one to talk to. So this is mostly just getting it out.
Went for the parent appointment this week. DD1 is being assessed for ASD. She is 7. I have posted threads on here before and got SUPER help and advice which has helped us all massively. Almost to the point where I was feeling like this was in my head and we shouldn't continue with the process (I have a history of doubting myself). Things were so calm and under control. We have been having visits from a support worker which has felt like a bit of a waste of time, but useful all the same.
Of course it was all only calm because of the measures I had put in place!
Then school broke up for the hols and DD1 isn't coping at all. We are heading back into the rough patches. I have some ideas of some things to try and manage it. But anyway...the appointment....
I was totally geared up to hear that DD1 isn't displaying enough traits for a DX because that is what we were told at the initial appointment. But the woman I saw this time was so much more engaged, really listened. At the end of the appointment she said that in her opinion it is quite likely that DD1 will be diagnosed with ASD based on what I said, but obviously we need to wait for the next appointment, where they assess her directly.
I feel a bit shocked tbh. I have been dismissed so many times, by so many people. I keep hearing yes there are issues, but not enough to do anything, so to be told that it does indicate something worth diagnosing...I don't know how to feel. Happy that finally someone is listening and taking into account the fact that DD1 masks hugely...or sad that actually there is an issue that won't just disappear with maturity (which is the schools angle atm)?
There is also the fact that a lot of the questions were touching on things I had never considered before, and I guess had just accepted as normal.
I don't think that a DX is going to change anything dramatically. I don't see anything really changing at all.
I am worried that people will doubt it and say I am making it up or embellishing it, because she does mask it so so much. I don't know.
Any advice for someone in this stage of the process? Did others feel the same way? Does it get easier? Did anyone get told similar and then go on to be told there would be no DX?
If you have read this, thank you. I don't think it is very coherent. My thoughts are just tumbling around.
Please or to access all these features
Please
or
to access all these features
Here are some suggested organisations that offer expert advice on special needs.
SN children
heading towards ASD diagnosis...just need to chat
16 replies
LizKeen · 02/07/2016 18:30
OP posts:
PolterGoose ·
02/07/2016 20:17
This reply has been deleted
Message withdrawn at poster's request.
PolterGoose ·
02/07/2016 21:33
This reply has been deleted
Message withdrawn at poster's request.
PolterGoose ·
03/07/2016 09:46
This reply has been deleted
Message withdrawn at poster's request.
PolterGoose ·
03/07/2016 09:48
This reply has been deleted
Message withdrawn at poster's request.
PolterGoose ·
03/07/2016 11:38
This reply has been deleted
Message withdrawn at poster's request.
Please create an account
To comment on this thread you need to create a Mumsnet account.