Hi. Not sure if this is the right place to post but after 5 weeks of seizures my 8month old DS was diagnosed with benign infantile epilepsy on Friday. It was diagnosed off the back of 4 films I have of the seizures on my phone and basically by a process of elimination. 2 EEGs, 3 ECGs, an ultrasound of brain and an MRI showed nothing wrong. He has had 22 seizures in the last 5 weeks and has now been put on keppra (increasing dose every 5 days-currently 0.5ml morning and night).
We are supposed to be going abroad next week for a week. I feel really anxious about it and currently undecided as to whether to go or not.
Has anyone else had this diagnosis? Feel a bit in the dark about it all at the moment and not really sure how things are going to pan out. Other experiences would be really interesting to hear. Thank you.
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Benign infantile Epilepsy
10 replies
OMGBabyNo3 · 22/05/2016 21:46
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zzzzz ·
22/05/2016 22:59
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