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is this normal?

(6 Posts)
LizKeen Mon 07-Mar-16 13:52:49

Is it normal for the Dr doing the "initial appointment" to say things like "a dx will be on her record for life" and "you have to consider whether a diagnosis would be beneficial" and generally try to discourage us from going further with assessment/dx?

She mentioned trying to reduce waiting lists twice.

I have come away feeling like she hasn't got how much this is affecting DD, and the rest of us, and that she was effectively saying she didn't have anything, while admitting she does display most of the traits. confused I know that the service is under strain, but that doesn't make my child any less distressed. She had a panic attack (confirmed by GP) a month ago.

She is referring DD on, and also referring for something else to do with concentration and her anxiety, so that is good, but I had to be quite insistent.

LizKeen Mon 07-Mar-16 13:54:38

Sorry I should say, it is assessment for Aspergers/HFA. ADHD was also mentioned.

cuntycowfacemonkey Mon 07-Mar-16 13:54:46

No not normal well certainly not right, well done for pushing though

PolterGoose Mon 07-Mar-16 13:57:33

Message withdrawn at poster's request.

zzzzz Mon 07-Mar-16 14:38:24

I think quite common and mine is very obviously disabled. I found it empowering though because I received it as "only you can judge if this is worth it for your family".

I'm sorry if it upset you. Take your own line and do what works for your child.

LizKeen Mon 07-Mar-16 14:50:20

Thanks, it doesn't upset me as such. I just feel like I have an uphill battle as it is. DD's dad is on board, but he would be quite happy to hear there is nothing wrong, and he would give no context to it, or consider any ulterior motives in the Dr saying that. So her saying that is just giving him something to cling to. He doesn't see most of the behaviour I see, and he has a general issue with seeing things as very black and white. I don't need him doubting me, it just makes things difficult between us. (We are no longer together.)

I feel that she does think there is something, and is discouraging us due to the wait lists. This service has been in the news where we live recently and they are a bit under fire. I think she has lost sight of the actual patient somewhat. DD masks things very well, and comes across very amiable and pleasant.

She was also stressing that she has no remit in DD's school. Which I know, and that is another up hill battle, but she is contacting them, and is asking what support they can put in place. I hope that this will make the school take more notice, and start us on the road towards an ed psych assessment.

She has also informed me that they basically don't deal with PDA at all. Which is disappointing. That is what I feel DD may have.

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