We are part way through the paediatrician assessments for ASD with my son. We are waiting for a SALT appointment and then the multi disiplinary board will meet to discuss the findings. To me and most people it is pretty obvious he has ASD he has the need for an exceptionally strict routine and has huge meltdowns when things don't go to plan. However if things go to plan and the strict routine is adhered to we can go for weeks or even months with no meltdowns or worries. We saw the paediatrician again at the beginning of the week as he has been suffering with motor tics for the last 6 months and they seem to be getting worse. She has suggested tourettes although I don't think they are that complex as they don't appear when he is at school or stimulated. At the moment we are going through a bad patch as things at home are not the same routine as normal- and things and situations when out and about haven't gone to plan or have gone wrong - (to a NT person nothing major) things like times of outings or planned activities that have changed. He can't cope with this and he goes in to full on meltdown. His meltdowns have got worse lately and I have been having to restrain him. I can cope and do cope however my DH cannot and because of this he does very little with us but if he is with us and a meltdown starts he will apologise profusely for the shocking behaviour to everyone around us and run off quick. I have everyone saying he needs to man up and be a dad and I get so cross with him and I tell him he needs to interact and deal with it but I honestly don't think he can. The whole situation is making him ill. I actually think he is ASD himself especially when I found out that he went to a special school for 9 months when he was about 8 for behavioural problems and this was a massive secret and he denies it. He refuses to read up on ASD attend any courses or go for counselling, he says ASD/ADHD etc is just an excuse for undisiplined children. He blames me for my sons behaviour and doesn't understand why he will not do as he is told. I have been told several times to chuck him out and he says he would have gone a long time ago if he didn't care - but I really want him to get help and try and understand my son. I honestly believe he wants to understand him but doesn't know how to. His main problem is embarassment he constantly apologises to people around us when my son is in meltdown - he will not allow him to play outside if he is at home as he feels sorry for the neighbours who want a peaceful weekend they don't want to listen to a shouting screaming child if something sets him off, he then gets so stressed my son picks up on it and they don't speak for days. He says he just wants normal kids and a normal family. However that isn't going to happen so where do we go for here - if he is refusing help and he is becoming mentally ill because of the situation where do we go from here?
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Getting help for my DH who can't cope with my ASD son
6 replies
peppajay · 24/02/2016 10:09
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