rant about children with SN being treated like a nuisance

[elliejjtiny]

I'm so cross. I've got 5 dc with sn. DS2 gets a lot of pain, DS4 has had 10 operations. Dc's 1, 3 and 5 don't "suffer" as such but struggle with development delay, autism etc.

My sister is a teacher and she is always moaning about the children with sn in her class. My mum just agrees with everything she says. I know I shouldn't have done this but I was saying that I was worried about DS2's upcoming school trip as last time they didn't take his wheelchair and he ended up in a lot of pain afterwards. The mum of a child with autism was told that she would have to come on the trip if she wanted her dd to go.

My mum said it was fair enough and it was ok for children with sn to be excluded from trips because they can go to activities for dc with sn (we go to a group once a month for dc with sn and one for dc with autism). I'm so cross that my dc's grandmother thinks it's ok for them to not have their needs met on school trips. And that their lovely groups where they get a chance to feel like they aren't the only ones struggling are instead of being included on school trips. "It's not fair on the NT children" to only go on accessible school trips apparently. And we're lucky to get dla, family fund etc. Why don't these people get that my dc's and others like them struggle and suffer all the time and these extras don't come close to making them equal to nt dc. Argh.

Sorry for incoherent ramble. I have a 1 year old climbing on me.

[ouryve]

Good grief, give their heads a wobble!

(I'd love to know where all these lovely groups for kids with SN are.)

[elliejjtiny]

Thank you. I wish they would understand how difficult it is for my boys to try and do what the other children do. But apparently it's all my fault for having them. Whatever happens, ds2 will be taking his wheelchair on the trip next week even if I have to stand by the coach and watch it go in myself. I'd superglue his trousers to the wheelchair seat but Mr practical ds1 pointed out that the wheelchair cushion is stuck on with Velcro so they could just take the cushion!

I was in hospital with ds4 yesterday and the staff all did those little things that made life easier for him. The nurse did all the weighing, measuring and SATs etc on his toy sheep. The consultant played table football with him and took him for a walk to meet her secretary. Very exciting for ds4 as he was allowed to have a nosey round the staff only bits of the hospital. It's the little things that make a big difference and I wish people would understand that my boys are being given little things that make their lives bearable, not special treats that nt children aren't getting.